Elle Loughran Student, Trinity College Dublin Elle Loughran is a Laidlaw scholar studying genetics at Trinity College Dublin in Ireland
Nik Zeps AHRECS Consultant Clinical trials have enormous value to society as they provide the most robust means of working
Clergy service to HRECs: the useful paradox within secular governance of research involving human participants
Aviva Kipen, Union for Progressive Judaism and Progressive Judaism Victoria. In 2015, I earned a Doctor of Ministry Studies degree
Empowering and enabling participation in human research: Reflections from two Queenslanders living with Multiple Sclerosis
Dr Gary Allen MS Qld Ambassador | AHRECS Senior Consultant | Member NS s4 review committee Natalie Walsh MS Qld
We respect you… we just don’t need to hear from you any more: Should the consumer and their community participate in research as partners instead of just being subjects?
By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador Council the Hopkins Centre| Ambassador MS
Judith C S Redman The compulsory presence of the Category D members on Australian Human Research Ethics Committees (HRECs) can
Authors: Joan Carlini,1 Kristen Ranse,2 Noela Baglot,3 and Laurie Grealish2 1. Griffith Business School, Griffith University, Southport campus, Queensland. Email: [email protected] 2.
In this issue, we are publishing an account of an end-of-life project in whose design there are some features that
In a notorious scene from Pirates of the Caribbean: The Curse of the Black
The use of biospecimens in research is a vital tool in the development of
Pieper, I. & Thomson, C.J.H. (2016) Beneficence as a Principle in Human Research. Monash
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…