Farida Fozdar responds and reflects upon the February 2021 post by Gary Allen and Mark Israel.
The Tower of Babel (Allen and Israel, 2021) is a compelling image when considering issues to do with translation and interpreting and the ethics of social research. Even when we speak the same language, we may not be ‘speaking the same language’, so to speak (excuse the triple metaphor). Talking past each other occurs in many ways but, in communicating the clear purpose and potential risks of one’s research, clarity is vital. Here, I outline a few issues from personal research experience, arguing that the communities themselves may be best placed to identify ethics issues and solutions to translation and interpreting dilemmas.
When working with those from a language different from that of the researchers, it may be the case that the idea of research is not well understood in the culture of origin…
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
Elle Loughran Student, Trinity College Dublin Elle Loughran is a Laidlaw scholar studying genetics at Trinity College Dublin in Ireland
Nik Zeps AHRECS Consultant Clinical trials have enormous value to society as they provide the most robust means of working
Clergy service to HRECs: the useful paradox within secular governance of research involving human participants
Aviva Kipen, Union for Progressive Judaism and Progressive Judaism Victoria. In 2015, I earned a Doctor of Ministry Studies degree
Empowering and enabling participation in human research: Reflections from two Queenslanders living with Multiple Sclerosis
Dr Gary Allen MS Qld Ambassador | AHRECS Senior Consultant | Member NS s4 review committee Natalie Walsh MS Qld
We respect you… we just don’t need to hear from you anymore: Should the consumer and their community participate in research as partners instead of just being subjects?
By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador Council the Hopkins Centre| Ambassador MS
Judith C S Redman The compulsory presence of the Category D members on Australian Human Research Ethics Committees (HRECs) can
The pedagogy of teaching research methods, let alone research ethics, is an under-researched field.
Dr Gary Allen, Senior consultant AHRECS | Profile | firstname.lastname@example.org The National Statement specifies researchers
Research ethics and integrity have always been at the forefront of my work, not
Worried your researchers might not be treating human research ethics as a core component of good research practice? Concerned they are not seeing it as their responsibility?
All of us might be part of the problem. Dr Gary Allen AHRECS Senior