In this post Gary discusses the components of a good internal report from a research ethics committee to the governing body of the host institution.
Such reports should be produced annually.
A constructive report should provide a snapshot of the committee during the reported period.
The report should cover specific matters that are optional and strategic in nature.
In this post find out why Gary is cranky about the proposed good practice guide for Australian Research Integrity Advisers.
#SPOILERALERT It is because he believes institutions need a network of collegiate Research Integrity Advisers to nurture and support a community of practice within their institution.
He also thinks mandatory reporting and telling people to speak in hypotheticals are STUPID.
While Gary describes this as a personal opinion, we agree. We don’t see how mandatory reporting will make serving as an RIA would be appealing or encourage anyone to consult them about whether an individual’s practice is appropriate.
AHRECS provides desktop audit and blueprint on Research Integrity within an institution and conducts professional development for RIAs.
Contact email@example.com to discuss.
Farida Fozdar responds and reflects upon the February 2021 post by Gary Allen and Mark Israel.
The Tower of Babel (Allen and Israel, 2021) is a compelling image when considering issues to do with translation and interpreting and the ethics of social research. Even when we speak the same language, we may not be ‘speaking the same language’, so to speak (excuse the triple metaphor). Talking past each other occurs in many ways but, in communicating the clear purpose and potential risks of one’s research, clarity is vital. Here, I outline a few issues from personal research experience, arguing that the communities themselves may be best placed to identify ethics issues and solutions to translation and interpreting dilemmas.
When working with those from a language different from that of the researchers, it may be the case that the idea of research is not well understood in the culture of origin…
In this post, Gary, Mark and Kim refect on the draft update to Section 5 of the Australia’s National Statement.
“In recent years in Australia, we have seen some painful cases where research ethics review delegated to a non-HREC review body has failed to guard against projects that proved to be embarrassing for their host institution (see, for example, the ‘Racist bus driver’ and ‘Laughing at the disabled’ projects)….”
The publication of the Hong Kong Principles comes at a time when there has never been more scrutiny of research. In this pandemic, the importance of science has been reinforced time and time again, but the importance of efforts to enhance reproducibility and transparency in research has also come to the fore. What the Hong Kong Principles do is provide a framework whereby research practices that strengthen integrity in research – a core component of reproducibility and trustworthiness – can be recognised, supported and rewarded.
Worried your researchers might not be treating human research ethics as a core component of good research practice? Concerned they are not seeing it as their responsibility?
All of us might be part of the problem. Dr Gary Allen AHRECS Senior Consultant Consider a hypothetical problem: You
Nik Zeps AHRECS Consultant Health services are often operated by people who strive to improve the way they deliver care.
Do we need consent for the continued use of children’s biological samples and data in research – and what if the grown up children cannot be located?
Parental consent is sufficient to authorize research involving infants and young children who do
Release of the National Statement on Ethical Conduct in Human Research 2007 (updated 2018) – With interview
The revised National Statement on Ethical Conduct in Human Research 2007 (updated 2018) was
Element Zero: What’s missing from the National Statement to support Consumer and Community Involvement in health research?
In this great post, Mark, Deborah and Ciara discuss a useful new element for the National Statement that relates to genuine involvement, input and participation for consumers/community members.
Mark Israel, Deborah Hersh and Ciara Shiggins
Advocates in health research of Consumer and Community Involvement – a concept better known in the United Kingdom as Patient and Public Involvement (PPI) – argue that it offers a way of building knowledge that incorporates the experiences and perspectives of a range of stakeholders, including patients and members of the public. Such involvement can improve the experience for research participants, enhance the process of informed consent, aid research impact and dissemination. It might also avoid the waste of resources on findings that have little relevance to end users or that cannot be implemented…
When it comes to research integrity, the international community often tends to focus on