Why university research ethics committees are vital
In this post Daniel Sokol writes about a troubling research integrity/human research ethics case that relates to Poland, the UK and Australia.
Daniel Sokol
When I sat on the Ministry of Defence’s Research Ethics Committee, some research projects were potentially dangerous. The risks of testing a new piece of military diving equipment, for example, are obvious. If it malfunctions, the volunteer could drown or suffer brain damage. The risks of historical research can be more subtle but they are nonetheless real, as shown by a recent case involving the University of Warwick.
Dr Anna Hájková, an associate professor of modern continental European history, researches the queer history of the Holocaust. She claimed that a Jewish prisoner may have engaged in a lesbian sexual relationship with a Nazi guard in Hamburg in 1944.
After the war, the prisoner worked as an actress and emigrated from…
Ethics CoPs not Ethics Police: Building communities of practice in ethics and integrity
In this post Gary Allen and Mark Israel discuss seeding and supporting virtual and physical Communities of Practice and their value over enforcement and policing.
Gary Allen and Mark Israel
Research ethics professionals have grown wary of researchers who talk disparagingly about the work of research ethics reviewers as the ‘ethics police’ (Klitzman, 2015; Makhoul et al., 2014). So, there is more than a little irony in our suggestion for responding constructively to such an adversarial stance (Allen & Israel, 2018) – the Community of Practice (CoP).
A CoP is characterised by a shared area of knowledge and set of practices within which experiences and insights can be shared and learning can be fostered (Wenger et al., 2002). Done well, a CoP can result in continual improvement across and…
The Tower of Babel and Human Research Ethics
Gary Allen and Mark Israel reflect on constructive approaches to languages in human research and for research ethics committees.
Gary Allen and Mark Israel
Much human research is conducted in languages that are not the same as that used by the research ethics review body or the chief investigators. This can manifest in a number of ways including:
Recruitment and consent materials;
Data collection tools (surveys, interview instruments and observation matrices), and
Collected data.
return of results to participants
There is literature on the ethics of interpreting and translation (Drugan, 2017) as well as on the ethics of research in those fields (Tiselius, 2019). However, for our purposes, we want to focus on the first two situations…
Heeding our stories: Getting the most from a reference group in disability research
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
Why human research ethics and research integrity aren’t fire blankets
Let’s start with fire safety. Used correctly, fire blankets (and other fire protection equipment) can manage a hazard and prevent increased harm. Institutions have a regulatory responsibility to make staff aware of standards by providing training in fire safety and correct behaviour.
SYNERGY ONE
While in Australia there is no human research ethics legislation, the National Statement is generally recognised as the national standard for human research ethics. The Australian Code for the Responsible Conduct of Research is the national standard for research integrity. Similarly, researchers need to be aware of the institution’s and national policies, procedures and arrangements with regards to human research ethics/research integrity (NS 3.47, AC Researcher Responsibility 16).
Should we accept funding for facial recognition research, and other dilemmas?
Gary Allen, Mark Israel and Colin Thomson|
PEER REVIEWED
In the 1980s and 1990s, many research institutions made the principled and commendable decision not to accept funding from the tobacco industry.
This reflected the recognition of the awful health impacts of tobacco use and the degree to which the industry was muddying the waters of public debate with academic and clinical research questioning the veracity of the overwhelming body of evidence that clearly showed the dire dangers of activity such as smoking. While we continue to be shocked by cases such those like the research of Hans J Eysenck (and this), for the main it is accepted that receiving funding from the tobacco industry is not in the public’s best interest.
A rose by any other name….?
As both a researcher and a research administrator in healthcare, one of the more vexing issues that I have to deal with on an almost daily basis is how to manage what are termed quality assurance, quality improvement and audit activities. In its 2014 publication entitled “Ethical Considerations in Quality Assurance and Evaluation Activities”, the NHMRC (NHMRC QA guidance) suggests that these can be loosely gathered together under an umbrella term of Quality Assurance (QA) and/or evaluation. I believe this construct is wrong and reinforces a longstanding approach to ethics review that relies on the category of an investigative activity to determine the level of review that is used. This approach is problematic and leads to some significant unintended consequences.
A new approach to the AHRECS site
In response to community feedback, from 1 November 2020, only papers, books and genuine resources will be posted to the AHRECS Resource Library; news and announcements will be posted to the feeds page. Searches of the site can include searches of the feed. Links to Research Ethics Monthly editions will also be posted to the feeds page. Please bear with us as we move all existing news items over to the feed. Eventually, this approach will make it easier to distinguish between research outputs and news items about human research ethics and research integrity.
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On the Problem of “Worldlessness”. Do The Declaration of Helsinki and the Council for International Organizations of Medical Science Guidelines Protect the Stateless in the Research Context?
Associate Professor Deborah Zion Chair, Victoria University, HREC. deborah.zion@vu.edu.au Can these bones live? Ezekiel,
2022 HREC Workshops
The Western Australian Human Research Ethics workshop series is back for 2022.
Friday 30 September 2022 – Human Ethics workshop
Interacting across boundaries: applying human research ethics in different situations.
The workshop is being hosted by the Research Office at Notre Dame University, Fremantle, in conjunction with AHRECS (Australasian Human Research Ethics Consultancy Services).
8.30am registration, 9.00am start, concluding after lunch.
Notre Dame Campus, Tannock Hall, Fremantle WA
Cost $170.00 per participant
There is an online registration available to persons based outside of Western Australia. On request, a special discount code for Zoom-only registration can be provided – please contact erich.vondietze@ahrecs.com if this interest you.
In this post, Erich provides an overview of the event, the guest speakers and the components of the workshop.
Register at . On request, a special discount code for Zoom-only registration can be provided – please contact erich.vondietze@ahrecs.com if this interest you. The online component is open to registrants outside Western Australia.
“Reminder about service options and an easy way to pay AHRECS,” we say… aware of how corporate sleazy that sounds
Dr Gary Allen, Senior Consultants AHRECS Prof. Mark Israel Prof. Colin Thomson AM . Just in
The seductive peril of precedent-based decision making
Human research ethics committees face workloads that can very easily become crippling, consequently precedent-based