What do HREC members think and do when deciding about children’s participation in social research? Results from the MESSI survey
Dr Gary Allen
November 30, 2021
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Research Ethics Monthly
ISSN 2206-2483
Questionable publishing practice? Are you harmed?
July 30, 2020
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Antony Ley (Information Policy Officer at Griffith University) & Gary Allen When considering whether a journal publisher is legitimate, researchers
Pondering on whether to submit your research output to a journal?
October 30, 2019
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The significance of how we talk and think about the pachyderm elephant mammoth in the room. Dr Gary Allen AHRECS
The F-word, or how to fight fires in the research literature
July 17, 2019
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Professor Jennifer Byrne | University of Sydney Medical School and Children’s Hospital at Westmead At home, I am constantly
Research Ethics Review as a Box-Ticking Exercise
June 21, 2019
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Associate Professor Angela Romano | Faculty Research Ethics Adviser, Creative Industries Faculty, Queensland University of Technology My role as
We respect you… we just don’t need to hear from you anymore: Should the consumer and their community participate in research as partners instead of just being subjects?
June 21, 2019
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By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador Council the Hopkins Centre| Ambassador MS
Release of the National Statement on Ethical Conduct in Human Research 2007 (updated 2018) – With interview
July 30, 2018
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The revised National Statement on Ethical Conduct in Human Research 2007 (updated 2018) was released on 9 July 2018. .
The complex art of benefit-sharing
July 24, 2018
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In community-based participatory action programs (programs which have a research component but which are also focussed on community development and
Vigilance versus vigilantism in science: Are ethics no longer important?
June 21, 2018
25 Comments
Michael James PhD, Senior Researcher, Rheumatology Unit, Royal Adelaide Hospital Les Cleland AM MBBS MD FRACP, Head of Rheumatology (1982-2015),
Categories
Featured posts
Unnatural justice: Public allegations could cause significant harm to vital clinical trial activity
October 25, 2021
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In this thought-provoking post, Nik Zeps (a consultant with AHRECS and a partner at Chrysalis) discusses the serious harm (in terms of reputation and career, as well as lost useful lines of inquiry) when there are complaints that allege ethical problems with clinical research.
These relate to situations where the clinical research is evaluating different kinds of intervention, where the evidence for the ‘accepted’ treatment might not be clear.
A misunderstanding of such research designs and a visceral reaction to apparent breaches aren’t helpful.
When such allegations are made, the researchers are rarely afforded an opportunity to respond and explain. If they were, one assumes that the manner could be easily cleared up.
We are embarrassed to admit in our own reporting of the cited case we really didn’t grasp the realities of what occurred or called out the very emotive reaction.
The value of respect in human research ethics: a conceptual analysis and a practical guide
October 25, 2018
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Pieper, I J and Thomson CJH The value of respect in human research ethics:
Research Ethics and the New Gene-editing Technology
May 26, 2019
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Nik Zeps, Consultant, AHRECS Keywords: Ethical Review, International Guidelines, Gene editing technologies, It has
Regulation of human epigenetic editing: ensuring international frameworks for governing Human Genome Editing don’t impede vital medical research
August 31, 2021
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In this thoughtful post, Nik Zeps reflects on human genome manipulation in medical research, the ethical guidance in Australia and internationally.
He discusses CRISPR and the furore in 2018 around the ‘genetically modified babies’ in China.
Nik then discusses the degree to which the COVID-19 pandemic has pushed discussions about human genetic manipulation off the media radar.
Nevertheless, there have been important international discussions about the topic, including a new WHO Framework. This topic was recently discussed in a paper by Zeps, Lysaght et al. 2021.
The situation might position the WHO as a major player in the international discussion about human genetic manipulation.