An ethics argument for data sharing
In this post, Gary Allen and Nik Zeps explore the human research ethics arguments and imperatives that only allow for the sharing of data, but establish a public good that can make sharing expected and essential.
This expectation should shape the approach to consent, the framing of assurances given to potential participants about confidentiality and e reflected in the application for research ethics review.
Research ethics committees and review bodies should be cognisant of these ethical arguments during the research ethics review of projects
Institutions must have clear policies and guidance material on data sharing.
Should we accept funding for facial recognition research, and other dilemmas?
Gary Allen, Mark Israel and Colin Thomson|
PEER REVIEWED
In the 1980s and 1990s, many research institutions made the principled and commendable decision not to accept funding from the tobacco industry.
This reflected the recognition of the awful health impacts of tobacco use and the degree to which the industry was muddying the waters of public debate with academic and clinical research questioning the veracity of the overwhelming body of evidence that clearly showed the dire dangers of activity such as smoking. While we continue to be shocked by cases such those like the research of Hans J Eysenck (and this), for the main it is accepted that receiving funding from the tobacco industry is not in the public’s best interest.
Can I use your answers anyway?
Dr Gary Allen AHRECS Senior Consultant Many national frameworks for human research ethics, such as the National Statement (2007 updated
Plain English communications and the PICF – and beyond
Bob Milstein See below For many of us, preparing the Participant Information and Consent Form (PICF) for a research project
The Ethics and Politics of Qualitative Data Sharing
Mark Israel (AHRECS and Murdoch University) and Farida Fozdar (The University of Western Australia). There is considerable momentum behind the
The research use of online data/web 2.0 comments
Does it require research ethics review and specified consent? Dr Gary Allen AHRECS Senior Consultant The internet is a rich
Ethics, Security and Privacy – the Bermuda Triangle of data management?
Malcolm Wolski and Andrew Bowness Griffith University To manage sensitive research data appropriately, ethics, security and privacy requirements need
Complainant anonymity in misconduct proceedings depends on the forum
Prof. Colin Thomson AM, Senior Consultant, AHRECS This news item, while identifying the fact that the decision relates to court proceedings
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Adele’s Adventures in Wonderland*: Reflections on a 12-year journey in ethics, research integrity and so much more
In this post, inspired by Lewis Carol’s book, ‘Alice in Wonderland’ Adele Kay reflects on the wild and wacky (and sometimes surreal) experiences she had in a great career in the human research ethics, research integrity, animal, etc spaces.
She generously shares observations, tips and suggestions how to navigate this space with good humour.
Part of this is reading, interpreting and explaining national frameworks to executive and other senior staff.
She reflects upon useful skills, experience, training and education.
Working for constructive change on these matters from within an institution can sometimes be frustrating and feel a little wacky. Often AHRECS has been brought in to provide an independent and expert opinion on what internal staff have been saying for some time.
We suspect her commentary and experiences will both ring true for experienced practitioners and offer helpful tips.
We greatly enjoyed this post and we hope you will too.
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Research Ethics Review as a Box-Ticking Exercise
Associate Professor Angela Romano | Faculty Research Ethics Adviser, Creative Industries Faculty, Queensland University