In the 1990s, I worked with many community groups and Native American/African-American communities on the difficult challenges of understanding environmental
Get access to some great resources (two examples included in this post) and support events like the Constructive Voices panels
Every month we add at least two items to the subscribers’ area. These include
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
Question for Research Ethics Monthly readers: Win for your institution a new 12-month subscription to https://www.ahrecs.vip
Prof. Mark Israel and Dr Gary Allen We would like to encourage institutions to
Dr Amanda Fernie, Manager Research Ethics & Integrity, Griffith University Dr Gary Allen, Senior