Element Zero: What’s missing from the National Statement to support Consumer and Community Involvement in health research?
In this great post, Mark, Deborah and Ciara discuss a useful new element for the National Statement that relates to genuine involvement, input and participation for consumers/community members.
Mark Israel, Deborah Hersh and Ciara Shiggins
Advocates in health research of Consumer and Community Involvement – a concept better known in the United Kingdom as Patient and Public Involvement (PPI) – argue that it offers a way of building knowledge that incorporates the experiences and perspectives of a range of stakeholders, including patients and members of the public. Such involvement can improve the experience for research participants, enhance the process of informed consent, aid research impact and dissemination. It might also avoid the waste of resources on findings that have little relevance to end users or that cannot be implemented…
Gary Allen, Mark Israel and Colin Thomson At first glance, there is much to
When it comes to human research and ethics review, self-censorship comes in two forms.
台灣的研究倫理規範之發展 甘偵蓉 Gan Zhen-Rong1 and 馬克·伊瑟利 Mark Israel2 Many commentators on research ethics have
“To everything there is a season, and a time to every purpose” a time