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Research Ethics Monthly

ISSN 2206-2483

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A graphic and symbols about Data Management.

Ethics Committees and Research Data Management

Dr Gary Allen March 14, 2023 No Comments
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Digital image of a folder with the words "GENETIC MANIPULATION" written on the outside and a stethoscope across it.

Regulation of human epigenetic editing: ensuring international frameworks for governing Human Genome Editing don’t impede vital medical research

August 31, 2021 No Comments

In this thoughtful post, Nik Zeps reflects on human genome manipulation in medical research, the ethical guidance in Australia and internationally.

He discusses CRISPR and the furore in 2018 around the ‘genetically modified babies’ in China.

Nik then discusses the degree to which the COVID-19 pandemic has pushed discussions about human genetic manipulation off the media radar.

Nevertheless, there have been important international discussions about the topic, including a new WHO Framework. This topic was recently discussed in a paper by Zeps, Lysaght et al. 2021.

The situation might position the WHO as a major player in the international discussion about human genetic manipulation.

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Graphic about research

A rose by any other name….?

November 30, 2020 No Comments

As both a researcher and a research administrator in healthcare, one of the more vexing issues that I have to deal with on an almost daily basis is how to manage what are termed quality assurance, quality improvement and audit activities. In its 2014 publication entitled “Ethical Considerations in Quality Assurance and Evaluation Activities”, the NHMRC (NHMRC QA guidance) suggests that these can be loosely gathered together under an umbrella term of Quality Assurance (QA) and/or evaluation. I believe this construct is wrong and reinforces a longstanding approach to ethics review that relies on the category of an investigative activity to determine the level of review that is used. This approach is problematic and leads to some significant unintended consequences.

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Wordcloud around the concept of 'BEST PRACTICE'

A poor call and two missed opportunities, but otherwise not a bad proposed revision to NS s5

October 20, 2020 No Comments

In this post, Gary, Mark and Kim refect on the draft update to Section 5 of the Australia’s National Statement.

“In recent years in Australia, we have seen some painful cases where research ethics review delegated to a non-HREC review body has failed to guard against projects that proved to be embarrassing for their host institution (see, for example, the ‘Racist bus driver’ and ‘Laughing at the disabled’ projects)….”

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What are questionable research practices as reported by ECRs in STEMM in Australia?

July 29, 2020 No Comments

Katherine Christian, Carolyn Johnstone, Jo-ann Larkins, Wendy Wright and Michael Doran Katherine Christian, Federation University Australia Carolyn Johnstone, Federation University

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Why autism research needs more input from autistic people

April 27, 2020 No Comments

Elle Loughran Student, Trinity College Dublin Elle Loughran is a Laidlaw scholar studying genetics at Trinity College Dublin in Ireland

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COVID 19, human research and human research ethics review

April 18, 2020 1 Comment

Prof. Colin Thomson AM AHRECS Senior Consultant We at AHRECS, like all our friends, colleagues and clients, are becoming more

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A Wordcloud around the concept of a disaster, printed on a bloody sheet

Towards a code of conduct for ethical post-disaster research

March 20, 2020 No Comments

JC Gaillard School of Environment, The University of Auckland, New Zealand Unit for Environmental Sciences and Management, North-West University, South

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The word data written on a card resting on a pile of other cards/words

The Ethics and Politics of Qualitative Data Sharing

February 5, 2020 No Comments

Mark Israel (AHRECS and Murdoch University) and Farida Fozdar (The University of Western Australia). There is considerable momentum behind the

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Featured posts

Vigilance versus vigilantism in science: Are ethics no longer important?

June 21, 2018 25 Comments

Michael James PhD, Senior Researcher, Rheumatology Unit, Royal Adelaide Hospital Les Cleland AM MBBS

Keyboard with a highlighted key having the word review written on it.

A preliminary geneaology of research ethics review and Māori

December 4, 2019 No Comments

Lindsey Te Ata o Tu MacDonald AHRECS, Consultant    In New Zealand, we have

Do we need consent for the continued use of children’s biological samples and data in research – and what if the grown up children cannot be located?

September 4, 2015 1 Comment

Parental consent is sufficient to authorize research involving infants and young children who do

The word "Translation" highlighted by a neon coloured highlighter pen

Tongue in Cheek

March 22, 2021 No Comments

Farida Fozdar responds and reflects upon the February 2021 post by Gary Allen and Mark Israel.

Farida Fozdar

The Tower of Babel (Allen and Israel, 2021) is a compelling image when considering issues to do with translation and interpreting and the ethics of social research. Even when we speak the same language, we may not be ‘speaking the same language’, so to speak (excuse the triple metaphor). Talking past each other occurs in many ways but, in communicating the clear purpose and potential risks of one’s research, clarity is vital. Here, I outline a few issues from personal research experience, arguing that the communities themselves may be best placed to identify ethics issues and solutions to translation and interpreting dilemmas.

When working with those from a language different from that of the researchers, it may be the case that the idea of research is not well understood in the culture of origin…

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