Element Zero: What’s missing from the National Statement to support Consumer and Community Involvement in health research?
In this great post, Mark, Deborah and Ciara discuss a useful new element for the National Statement that relates to genuine involvement, input and participation for consumers/community members.
Mark Israel, Deborah Hersh and Ciara Shiggins
Advocates in health research of Consumer and Community Involvement – a concept better known in the United Kingdom as Patient and Public Involvement (PPI) – argue that it offers a way of building knowledge that incorporates the experiences and perspectives of a range of stakeholders, including patients and members of the public. Such involvement can improve the experience for research participants, enhance the process of informed consent, aid research impact and dissemination. It might also avoid the waste of resources on findings that have little relevance to end users or that cannot be implemented…
Pieper, I. & Thomson, C.J.H. Justice in Human Research Ethics: A Conceptual and Practical Guide, Monash Bioethics Review I Volume
Gary Allen, Mark Israel and Colin Thomson COVID-19 is prompting changes to academic delivery,
Nerida Quatermass | University Copyright Officer | Project Manager, Creative Commons Australia at Queensland
What’s at risk? Who’s responsible? Moving beyond the physical, the immediate, the proximate, and the individual
Building the Conversation This month’s addition to the Building the Conversation series reflects upon
Taking Time in the Midst of a Crisis: Prior Informed Consent, Sociability and Vulnerability in Ethnographic Research
As an anthropologist, the way I work has particular features which are, in my