In this post Gary Allen and Mark Israel discuss seeding and supporting virtual and physical Communities of Practice and their value over enforcement and policing.
Gary Allen and Mark Israel
Research ethics professionals have grown wary of researchers who talk disparagingly about the work of research ethics reviewers as the ‘ethics police’ (Klitzman, 2015; Makhoul et al., 2014). So, there is more than a little irony in our suggestion for responding constructively to such an adversarial stance (Allen & Israel, 2018) – the Community of Practice (CoP).
A CoP is characterised by a shared area of knowledge and set of practices within which experiences and insights can be shared and learning can be fostered (Wenger et al., 2002). Done well, a CoP can result in continual improvement across and…
Gary Allen and Mark Israel reflect on constructive approaches to languages in human research and for research ethics committees.
Gary Allen and Mark Israel
Much human research is conducted in languages that are not the same as that used by the research ethics review body or the chief investigators. This can manifest in a number of ways including:
Recruitment and consent materials;
Data collection tools (surveys, interview instruments and observation matrices), and
return of results to participants
There is literature on the ethics of interpreting and translation (Drugan, 2017) as well as on the ethics of research in those fields (Tiselius, 2019). However, for our purposes, we want to focus on the first two situations…
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
Frequent visitors to the website of AHRECS will have noticed a change to the library of images we use across the site (e.g. the Resource Library and the Research Ethics Monthly).
We did this to refresh our library of images at the same time as we updated nearly all sections of our website.
We have also made the conscious decision to remove the watermark from our images. As a result, it should be easier for the human research ethics and research integrity community to find useful images for your needs.
If you build it, they will come- 2020 Human Research Ethics Committee (HREC) Training Conference (online) 18-20 Nov
Approximately 2.5 months from inception to execution, a veritable cornucopia of Australia’s thought leaders on topics such as consent, voluntary
In this post, Gary, Mark and Kim refect on the draft update to Section 5 of the Australia’s National Statement.
“In recent years in Australia, we have seen some painful cases where research ethics review delegated to a non-HREC review body has failed to guard against projects that proved to be embarrassing for their host institution (see, for example, the ‘Racist bus driver’ and ‘Laughing at the disabled’ projects)….”
The publication of the Hong Kong Principles comes at a time when there has never been more scrutiny of research. In this pandemic, the importance of science has been reinforced time and time again, but the importance of efforts to enhance reproducibility and transparency in research has also come to the fore. What the Hong Kong Principles do is provide a framework whereby research practices that strengthen integrity in research – a core component of reproducibility and trustworthiness – can be recognised, supported and rewarded.
Pieper, I and Thomson, CJH (2011) Contextualising Merit and Integrity within Human Research, Monash
In a notorious scene from Pirates of the Caribbean: The Curse of the Black
Is the pre-recruitment of research participants potentially an ethical issue in Australia? (David Hunter)
I’ve recently published a paper focused on the UK looking at some ethical issues
Lindsey Te Ata o Tu MacDonald AHRECS, Consultant In New Zealand, we have