We respect you… we just don’t need to hear from you anymore: Should the consumer and their community participate in research as partners instead of just being subjects?
By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador Council the Hopkins Centre| Ambassador MS
Why do we need Category D appointments on HRECs and how should we find suitable people?
Judith C S Redman The compulsory presence of the Category D members on Australian Human Research Ethics Committees (HRECs) can
Consumer Co-design for End of Life Care Discharge Project
In this issue, we are publishing an account of an end-of-life project in whose design there are some features that
Release of the National Statement on Ethical Conduct in Human Research 2007 (updated 2018) – With interview
The revised National Statement on Ethical Conduct in Human Research 2007 (updated 2018) was released on 9 July 2018. .
The complex art of benefit-sharing
In community-based participatory action programs (programs which have a research component but which are also focussed on community development and
On the Problem of “Worldlessness”. Do The Declaration of Helsinki and the Council for International Organizations of Medical Science Guidelines Protect the Stateless in the Research Context?
Associate Professor Deborah Zion Chair, Victoria University, HREC. deborah.zion@vu.edu.au Can these bones live? Ezekiel, 37:3. The Declaration of Helsinki has
Building beneficial relationships when conducting research with migrant communities
In my experience, projects that involve working with migrant groups and communities reveal a range of complex issues with regards
Ethical Self-Assessment: Excellence in Reflexivity or Corporatisation Gone Mad?
Research ethics and integrity have always been at the forefront of my work, not only because the issues which I
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Making Indigenous research ethics a compulsory facet of supervisor development and student training
There is an increasing trend in Australian universities to provide professional development for supervisors
Terms and conditions apply
Kids tell us that making decisions can sometimes be hard (anyone who has taken
Conversations with an HREC: A Researcher’s perspective
Dr Ann-Maree Vallence and Dr Hakuei Fujiyama College of Science, Health, Engineering and Education,
Ethics CoPs not Ethics Police: Building communities of practice in ethics and integrity
In this post Gary Allen and Mark Israel discuss seeding and supporting virtual and physical Communities of Practice and their value over enforcement and policing.
Gary Allen and Mark Israel
Research ethics professionals have grown wary of researchers who talk disparagingly about the work of research ethics reviewers as the ‘ethics police’ (Klitzman, 2015; Makhoul et al., 2014). So, there is more than a little irony in our suggestion for responding constructively to such an adversarial stance (Allen & Israel, 2018) – the Community of Practice (CoP).
A CoP is characterised by a shared area of knowledge and set of practices within which experiences and insights can be shared and learning can be fostered (Wenger et al., 2002). Done well, a CoP can result in continual improvement across and…