Taking Time in the Midst of a Crisis: Prior Informed Consent, Sociability and Vulnerability in Ethnographic Research
As an anthropologist, the way I work has particular features which are, in my view, both empowering and paralysing. This
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Ethics and the Participation of Indigenous Children and Young People in Research
Indigenous children and young people’s participation in social research raises a range of ethical
Can you hear us? The Queensland experience of health research with Aboriginal and Torres Strait Islander people
There is growing concern in Queensland about the conduct of health research meeting Indigenous
Heeding our stories: Getting the most from a reference group in disability research
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
Lost time may never be found again but is it time to talk about the duration of ethics approvals?
“To everything there is a season, and a time to every purpose” a time
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