

Inclusion of Culturally and Linguistically Diverse populations in Clinical Trials:
Nik Zeps AHRECS Consultant Clinical trials have enormous value to society as they provide the most robust means of working

Research Ethics and the New Gene-editing Technology
Nik Zeps, Consultant, AHRECS Keywords: Ethical Review, International Guidelines, Gene editing technologies, It has now been over six months since
A call for a national inquiry into the burden of research ethics and governance
Adrian Barnett, Queensland University of Technology . Do we need a national inquiry into the burden of research ethics and

Conducting research with (not on) consumers in health – exploring ethical considerations
Authors: Joan Carlini,1Â Kristen Ranse,2Â Noela Baglot,3 and Laurie Grealish2 1. Griffith Business School, Griffith University, Southport campus, Queensland. Email: J.Carlini@Griffith.edu.au. 2.

Consumer Co-design for End of Life Care Discharge Project
In this issue, we are publishing an account of an end-of-life project in whose design there are some features that

Release of the National Statement on Ethical Conduct in Human Research 2007 (updated 2018) – With interview
The revised National Statement on Ethical Conduct in Human Research 2007 (updated 2018) was released on 9 July 2018. .
The inclusion of retracted trials in systematic reviews: implications for patients’ safety
After a paper has been through peer review and has been published it is the obligation of the scientific community
Research Ethics in the Philippines: a personal journey
My recall of the earliest encounter I had with research ethics is when, as a newly appointed faculty member of
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Featured posts

The challenge of being ‘fit for purpose’
In this incredibly interesting post, Racheal Laugery reflects on an incredibly uncomfortable but very timely question.
Is the current approach to research ethics review fit for purpose?
In the context of the COVID-19 pandemic, border closes and reduced international student income, insufficient government funding and a drive towards commercial research/commercialisation is our current approach to research ethics review Imbil and responsive enough?
What needs to be challenged and
changed? How can we get there? Who will need professional development and capacity building?
This requires an approach to reform that is focused on research ethics reviewers, researchers and research office staff.
Change won’t be quick and easy, but is absolutely necessary to ensure an institution’s arrangements are fit for the time.
Our approach will need to be interactive and responsive to problems that we can’t foresee yet.

Magical incantations and the tyranny of the template
Building the Conversation This month’s addition to the Building the Conversation series reflects upon

Plain English communications and the PICF – and beyond
Bob Milstein See below For many of us, preparing the Participant Information and Consent
The Ethics of Evaluation Research
Evaluation research is used to assess the value of such things as services, interventions,