Technology research in sensitive settings: A workshop on ethical encounters in HCI
In May this year, a group of researchers gathered in San Jose, California, to attend a workshop on “Ethical Encounters
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Heeding our stories: Getting the most from a reference group in disability research
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
Undue Influence in Research Between High-Income and Lower-Income Countries
Red Thaddeus D. Miguel According to the Belmont Report (1979), respect for persons incorporates two
Beneficence as a Principle in Human Research
Pieper, I. & Thomson, C.J.H. (2016) Beneficence as a Principle in Human Research. Monash
Are you attending the ‘Constructive voices’ panel discussions in November about the 2018 changes to the Australian Code and National Statement on Ethical Conduct in Human Research?
Just a reminder these online discussions are free, but you will need to RSVP.