Ethics Committees and Research Data Management
Human research projects often raise complex Data Management issues and considerations that can be pertinent for consent, privacy, risk management and research ethics review.
Research data is also an important element of research integrity, in that it serves as a record of the way in which the research project was conducted and the results of the work.
The data of the project could be useful and valuable for researchers conducting wider work in the same area. There are strong ethical reasons for the data to be in a form useful for sharing and the consent obtained allow for that sharing.
The responsible approach to that data should be informed by a mixture of institutional policy, the law /regulation and methodological standards.
In this post, Nichola Burton, Program Manager (Institutional Underpinnings), ARDC reflects on the issues confronting Australia Human Research Ethic Committees and their host institution.
An ethics argument for data sharing
In this post, Gary Allen and Nik Zeps explore the human research ethics arguments and imperatives that only allow for the sharing of data, but establish a public good that can make sharing expected and essential.
This expectation should shape the approach to consent, the framing of assurances given to potential participants about confidentiality and e reflected in the application for research ethics review.
Research ethics committees and review bodies should be cognisant of these ethical arguments during the research ethics review of projects
Institutions must have clear policies and guidance material on data sharing.
Is it time to extend the required membership of research ethics committees?
Dr Gary Allen It doesn’t seem so long ago that all that HRECs in Australia needed to do was consider
The ethical petri-dish: recommendations for the design of university science curricula
Dr Jo-Anne Kelder, Senior Lecturer, Curriculum Innovation and Development, University of Tasmania, https://www.linkedin.com/in/jokelder/ Professor Sue Jones, Honorary Researcher, School of
The Ethics and Politics of Qualitative Data Sharing
Mark Israel (AHRECS and Murdoch University) and Farida Fozdar (The University of Western Australia). There is considerable momentum behind the
Ethics, Security and Privacy – the Bermuda Triangle of data management?
Malcolm Wolski and Andrew Bowness Griffith University To manage sensitive research data appropriately, ethics, security and privacy requirements need
Griffith University’s implementation of the Australian Code (2018)
Dr Amanda Fernie, Manager Research Ethics & Integrity, Griffith University Dr Gary Allen, Senior Policy Officer, Griffith University AUSTRALIAN CODE
Release of the National Statement on Ethical Conduct in Human Research 2007 (updated 2018) – With interview
The revised National Statement on Ethical Conduct in Human Research 2007 (updated 2018) was released on 9 July 2018. .
Categories
Featured posts
You must be this ethical…
In this controversial post, AHRECS Senior Consultant Dr Gary Allen poses the challenging question: Should institutions with lean and fast proportional review arrangements leverage them as incentives for ethical behaviour.
AHRECS recommends institutions resourcing reflective practice, rather than police compliance (https://www.ahrecs.com/resources/resourcing-reflective-practice-whiteboard-video-7-5-min) but could such a systemic reward be helpful?
He discusses the behaviour that could be rewarded and how the reward might function.
The post suggests the arrangements, processes and data collection institutions will need to have in place to make such a reward system work.
While we are generally not fans of introducing any punitive element to human research ethics, preferring collegiate approaches that are focussed constructively on an institution’s research culture, this is an interesting idea. It is worth further serious consideration.
Ethical research with young children: Whose research, whose agenda?
The last decade has seen increased global focus on research with young children within
Ethics Committees and Research Data Management
Human research projects often raise complex Data Management issues and considerations that can be pertinent for consent, privacy, risk management and research ethics review.
Research data is also an important element of research integrity, in that it serves as a record of the way in which the research project was conducted and the results of the work.
The data of the project could be useful and valuable for researchers conducting wider work in the same area. There are strong ethical reasons for the data to be in a form useful for sharing and the consent obtained allow for that sharing.
The responsible approach to that data should be informed by a mixture of institutional policy, the law /regulation and methodological standards.
In this post, Nichola Burton, Program Manager (Institutional Underpinnings), ARDC reflects on the issues confronting Australia Human Research Ethic Committees and their host institution.
Areas of activity
We are delighted with how busy AHRECS is at the moment in the human research ethics and research integrity spheres in Australia, Aotearoa New Zealand and the United Kingdom. Our current work can be broken down into four categories:
1. Informing the practice of a research institution
2. Fostering and supporting a community of practice
3. Helping with tricky questions
4. Formulating an approach
To discuss any of the above, contact one of our senior consultants, or send an email to Enquiry AHRECS enquiry@ahrecs.com.
While our activities are focussed on Australia, Aotearoa New Zealand and…