Following my September 2017 piece: Ethics and the Participation of Indigenous Children and Young People in Research, this article briefly
Indigenous children and young people’s participation in social research raises a range of ethical issues that researchers and participants must
AHRECS has considerable experience working with universities, hospitals, research institutions, government and non-government organisations to care for and build the
The Australian Code for the Responsible Conduct of Research is presently under review. Issued jointly in 2007 by the National
There is an increasing trend in Australian universities to provide professional development for supervisors of higher degree research (HDR) students
Last year, I was invited by Tracey Bretag to contribute a chapter to the Handbook of Academic Integrity. The invite
Not so many years ago in Australia if you entered a research office and
Think of, and treat, consent as a powerful and complex verb, not a strictly defined and constrained noun
The notion of consent and the expectation researchers will seek the prior consent of participants has a long history in human research ethics.
It has been a feature of many of the most infamous ethical Breakers commerce stamps and scandals.
Consequently, it has become a baked in feature of most of the guidelines on human research ethics.
But is that a good thing?
The typical approach to consent in human research doesn’t really work for a number of circumstances, research designs or potential how to participant pools.
Long strict guidelines can compound the error and can risk alienating researchers.
A more nuanced approach that provides guidance on necessary features of consent material can be more helpful than template consent materials.
This is exactly the kind of approach that this called for by the National Statement in Australia
Human research ethics committees face workloads that can very easily become crippling, consequently precedent-based
Element Zero: What’s missing from the National Statement to support Consumer and Community Involvement in health research?
In this great post, Mark, Deborah and Ciara discuss a useful new element for the National Statement that relates to genuine involvement, input and participation for consumers/community members.
Mark Israel, Deborah Hersh and Ciara Shiggins
Advocates in health research of Consumer and Community Involvement – a concept better known in the United Kingdom as Patient and Public Involvement (PPI) – argue that it offers a way of building knowledge that incorporates the experiences and perspectives of a range of stakeholders, including patients and members of the public. Such involvement can improve the experience for research participants, enhance the process of informed consent, aid research impact and dissemination. It might also avoid the waste of resources on findings that have little relevance to end users or that cannot be implemented…
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