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ResourcesHuman Research Ethics(US) ‘Right-to-try’ bill passes Congress – CNN (Michael Nedelman and Jacqueline Howard | May 2018)

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

(US) ‘Right-to-try’ bill passes Congress – CNN (Michael Nedelman and Jacqueline Howard | May 2018)

 


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With a House of Representatives vote Tuesday, Congress passed legislation that could give terminally ill patients a way to independently seek drugs that are still experimental and not fully approved by the US Food and Drug Administration.

Despite being lauded by some politicians (including subsequent to this story President Trump) this law is likely to concern most people involved in human research ethics (it certainly does concern us).

The House voted 250-169 in favor of the bill, which the Senate passed in August. The bill will now be sent to President Trump, who is expected to sign it.
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“This is an extraordinarily great day,” Democratic Sen. Joe Donnelly of Indiana, one of the original cosponsors of the bill, said in a press conference after the event. Donnelly said he met with Vice President Mike Pence a few weeks ago and urged him to push for a House vote on the bill.
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