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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Should we tell children and young people about the positive experience of taking part in clinical trials? (Papers: Merle Spriggs 2015)

 


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Abstract: Should we tell children and young people that they could gain personal benefit from taking part in clinical trials and that they have a moral duty to take part? Should we tell them that they may come to feel “special,” gain “more confidence,” deal more effectively with their disease, and have their lives enriched (Luchtenberg et al. 2015)? Luchtenberg and colleagues (2015) report on young people’s positive experiences of taking part in clinical trials and recommend that professionals give children and young people more information about how research participation“ can affect their life in a positive way” and more information about opportunities to take part. They report that children and young people, between the ages of 10 and 23 years, often feel a moral duty to participate, are often altruistic, and while they may take part in research in the hope of improving their health, they are not necessarily under the “therapeutic misconception.”

Spriggs, M. (2015). Should we tell children and young people about the positive experience of taking part in clinical trials? American Journal of Bioethics. 15(11): 35-36
Publisher: http://www.tandfonline.com/doi/abs/10.1080/15265161.2015.1088976?journalCode=uajb20



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