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ResourcesHuman Research EthicsPatients find misleading information on the internet – The Ethics Blog (Pär Segerdahl | October 2018)

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Patients find misleading information on the internet – The Ethics Blog (Pär Segerdahl | October 2018)

Published/Released on October 30, 2018 | Posted by Admin on November 25, 2018 / , , , , , , ,
 


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In phase 1 clinical studies of substances that might possibly be used to treat cancer in the future, cancer patients are recruited as research participants. These patients almost always have advanced cancer that no longer responds to the standard treatment.

That research participation would affect the cancer is unlikely. The purpose of a phase 1 study is to determine safe dosage range and to investigate side effects and other safety issues. This will then enable proceeding to investigating the effectiveness of the substance on specific forms of cancer, but with other research participants.

Given that patients often seek online information on clinical trials, Tove Godskesen, Josepine Fernow and Stefan Eriksson wanted to investigate the quality of the information that currently is available on the internet about phase 1 clinical cancer trials in Sweden, Denmark and Norway.

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