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ResourcesHuman Research EthicsNDA (Ireland) Ethical Guidance for Research with People with Disabilities (Guidance | 2009)

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

NDA (Ireland) Ethical Guidance for Research with People with Disabilities (Guidance | 2009)

 


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“As the field of disability research in Ireland expands, it is vital that quality in such research be ensured.

In accordance with its statutory role in relation to disability research, the National Disability Authority offers new ethical guidelines for disability research as a resource to assist the expansion of quality disability research in Ireland. The guidelines have been drawn up through consideration of best practice internationally alongside a wide process of consultation, in particular consultation with people with disabilities.

These guidelines are designed to be used by those involved in funding, conducting, or managing disability research, most especially that which involves people with disabilities as participants. They do not replace existing general ethical guidelines in social and policy research but supplement them by providing an outline of key issues from a disability perspective.”

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TABLE OF CONTENTS
1. INTRODUCTION TO DISABILITY RESEARCH AND ETHICS 5
2. ETHICAL GUIDANCE ON RESEARCH WITH PEOPLE WITH DISABILITIES 11
3. CORE VALUES FOR RESEARCH WITH PEOPLE WITH DISABILITIES 17
4. GUIDANCE FOR GOOD PRACTICE IN RESEARCH WITH PEOPLE WITH DISABILITIES 23
5. CASE STUDIES 45
6 REFERENCES 55
APPENDIX 1 69
ENDNOTES 75

 



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