ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Resource Library

Research Ethics MonthlyAbout Us

ResourcesHuman Research EthicsGenetic Research in Aboriginal and Torres Strait Islander Communities: Beginning the Conversation (Paper: Emma Kowal et al 2011)

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Genetic Research in Aboriginal and Torres Strait Islander Communities: Beginning the Conversation (Paper: Emma Kowal et al 2011)

 


View full details | Go to resource


Paper: Kowal, E., Rouhani, L., & Anderson, I. (2011). Genetic research in Aboriginal and Torres Strait Islander communities: Beginning the conversation.

PREFACE (Excerpt):
Genetics is at the forefront of medical research, but it is rarely used in Indigenous health research projects. In the past, proposals to conduct genetic studies in Aboriginal and Torres Strait Islander communities in Australia have been highly criticised and rarely funded. However, genetic researchers worldwide argue that genetics has the potential to reduce health disparities (including Indigenous health disparities) in multiple ways: through understanding disease pathogenesis, using genetics to probe environmental risk, predicting disease risk, finding novel diagnostics and drug targets, and pharmacogenomics.

Understandably, many Indigenous people interpret genetic research in the context of their experiences of colonisation. Multiple fears constitute barriers to effective research partnerships between Indigenous communities and genetic researchers. These concerns include genetic theft or ‘biopiracy’, that genetics will be used to determine Aboriginality and may fuel racism, of poor access to potential health care innovations, of bad experiences of the Human Genome Diversity Project (known by some as the ‘Vampire’ project) and of struggles over access to deoxyribonucleic acid (DNA) extracted from human remains.

 



Resources Menu

Research Integrity


Human Research Ethics

0