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(Canada) Evaluating prospective study registration and result reporting of trials conducted in Canada from 2009-2019 (Preprint Paper: Mohsen Alayche et al. | September 2022)

Posted by Connar Allen in Human Research Ethics on November 19, 2022
Keywords: Clinical trial, Human research ethics, Institutional responsibilities, International, Medical research, Merit and integrity, Research results, Researcher responsibilities

The Linked Original Item was Posted On September, 2 2022

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Abstract

Background

 Adherence to study registration and reporting best practices are vital to foster evidence-based medicine. Poor adherence to these standards in clinical trials conducted in Canada would be detrimental to patients, researchers, and the public alike.

Methods

The registration of clinical trials and the publication of trial results are fundamental to the integrity of clinical trials and clinical practice. They ensure that there is efficiency in future researchers knowing whether there is a need for a clinical agent to be tested.  It also means clinicians know whether it is safe to use an agent in their care.  When there is no registration of a trial or publication of trial results, it raises the question of whether the findings were not in accord with the wishes of the trial sponsor.  Canada is definitely not the only country with poor levels of registrations and publication. Nevertheless, it is still a serious concern.

All registered clinical trials on ClinicalTrials.gov conducted in Canada as of 2009 and completed by 2019 were identified. A cross-sectional analysis of those trials assessed prospective registration, subsequent result reporting in the registry, and subsequent publication of study findings. The lead sponsor, phase of study, clinical trial site location, total patient enrolment, number of arms, type of masking, type of allocation, year of completion, and patient demographics were examined as potential effect modifiers to these best practices.

Results

A total of 6,720 trials met the inclusion criteria. From 2009-2019, 59% (n=3,967) of them were registered prospectively and 39% (n=2,642) reported their results in the registry. Of the trials registered between 2009-2014, 55% (n=1,482) were subsequently published in an academic journal. Of the 3,763 trials conducted exclusively in Canada, 3% (n=123) met all 3 criteria of: prospective registration, reporting in the registry, and publishing findings. In contrast, of the remaining 2,957 trials with both Canadian and international sites, 41% (n=1,238) had an overall compliance to these three criteria. Overall, the odds of having adherence to all three practices concurrently in Canadian trials decreases by 95% when compared to international trials (OR = 0.05; 95CI: 0.04 – 0.06).

Evaluating prospective study registration and result reporting of trials conducted in Canada from 2009-2019
Background Adherence to study registration and reporting best practices are vital to foster evidence-based medicine. Poor adherence to these standards in clinical trials conducted in Canada would be detrimental to patients, researchers, and the public alike. Methods All registered clinical trials o…

Related Reading

(USA) NIH Fails to Enforce Rules for Reporting Clinical Trial Results – The Scientist (Amanda Heidt | August 2022)

(EU) New EU Protocol Aims to Improve Clinical Trial Transparency – TheScientist (Sophie Fessl | February 2022)

(EU) European law could improve ‘scandalous’ lack of clinical trial data reporting – Science (Barbara Casassus | July 2021)

(US) Following court ruling, NIH warns drug and device companies to post missing trial data – STAT News (Lev Facher | August 2020)

Too Many HF Trial Results Underreported or Never Published – TCTMD (L.A. McKeown | June 2020)

(US) Federal judge rules clinical trial sponsors must publish a decade’s worth of missing data – STAT (Lev Facher | February 2020)

(US) FDA and NIH let clinical trial sponsors keep results secret and break the law – Science (Charles Piller | January 2020)

European universities dismal at reporting results of clinical trials – Nature (Nic Fleming | April 2019)

Not Reporting Results of a Clinical Trial Is Academic Misconduct – ACP (Editorial | Joshua D. Wallach, MS, PhD; Harlan M. Krumholz, MD, SM | May 2019)

(US/UK) Data suggest US, UK universities fall woefully short on reporting clinical trial results – Endpoints News (Natalie Grover | March 2019)

Major medical journals don’t follow their own rules for reporting results from clinical trials – Science (Jocelyn Kaiser | February 2019)

(UK) Crackdown on unreported trials is good news for researchers – *Research (Till Bruckner | November 2018)

Tool ‘names and shames’ hidden drug trials – BBC (Chris Foxx | February 2018)

Opinion: Where’s the data? Missing trial results undermine pandemic preparedness – Devex (Till Bruckner | November 2017)

Grantees, Reveal Thy Findings: A Push By Funders for Transparency in Medical Research – Inside Philanthropy (Till Bruckner | July 2017)

Academic claims ‘integrity’ of nurse studies often undermined by poor trial registration – Nursing Times (Jo Stephenson | August 2017)

Time to publication for publicly funded clinical trials in Australia: an observational study (Papers: Linn Beate Strand, et al | 2017)

Unpublished trials are a cancer at the core of evidence based medicine – Aftenposten (Ben Goldacre: October 2016)

New federal rules (US) target woeful public reporting of clinical trial results – STAT (Charles Piller September 2016)

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