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ResourcesHuman Research Ethics“A Real Super Ethical Super Moral Perspective:” The Research Ethics of Research Participants (Papers: Justin Snyder and Joanna Lysons 2015)

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

“A Real Super Ethical Super Moral Perspective:” The Research Ethics of Research Participants (Papers: Justin Snyder and Joanna Lysons 2015)

Published/Released on November 12, 2015 | Posted by Admin on February 2, 2016 / , , , , , ,
 


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“What are the research protections ethics of contemporary research participants? There are few answers to this question. However, to fully honor the principle of “respect for persons,” human protections programs should engage community opinion. Some have called this an “evidence-based and participant-centered” approach to protections (e.g. McDonald, Cox, and Townsend 2014). With this in mind, five focus groups were conducted with former research participants. The focus groups addressed perceptions of research participation generally, but the findings for this poster come specifically from questions referring to research protections policies and programs. Participants knew or assumed, as well as desired, there to be ethical oversight of investigators, but they showed only a vague understanding of the protections actually afforded them. We found, nonetheless, that research participants and human protections programs share similar ethical principles. Both generally agree on what it means to have, adopting the words of one research participant, “a real super ethical super moral perspective.” The poster identifies 4 ethical principles or expectations for human protection programs commonly vocalized in the focus groups. Future research should explore how participants do or would apply their research ethics, which will likely reveal discrepancies among participants and between participants and protections programs”

Snyder J and Lysons J (2015) “A Real Super Ethical Super Moral Perspective:” The Research Ethics of Research Participants. Poster at PRIM&R’s Advancing Ethical Research Conference, Boston MA, 12-15 November 2015. Available at: https://www.researchgate.net/publication/282610253_A_Real_Super_Ethical_Super_Moral_Perspective_The_Research_Ethics_of_Research_Participants (accessed 3 February 2016)



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