Skip to content

ACN - 101321555 | ABN - 39101321555

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

AHRECS icon
  • Home
  • About Us
    • Consultants
    • Services
  • Previous Projects
  • Blog
  • Resources
  • Feeds
  • Contact Us
  • More
    • Request a Quote
    • Susbcribe to REM
    • Subscribe to VIP
Menu
  • Home
  • About Us
    • Consultants
    • Services
  • Previous Projects
  • Blog
  • Resources
  • Feeds
  • Contact Us
  • More
    • Request a Quote
    • Susbcribe to REM
    • Subscribe to VIP
Exclude terms...
Aboriginal and Torres Strait Islander
AHRECS
Analysis
Animal ethics
Animal Ethics Committee
Animal handling
Animal housing
Animal Research Ethics
Animal Welfare
ANZCCART
Artificial Intelligence
Arts
Australia
Authorship
Belief
Beneficence
Big data
Big data
Biobank
Bioethics
Biomedical
Biospecimens
Breaches
Cartoon/Funny
Case studies
Clinical trial
Collaborative research
Conflicts of interest
Consent
Controversy/Scandal
Controversy/Scandal
Creative
Culture
Data management
Database
Dual-use
Essential Reading
Ethical review
Ethnography
Euthanasia
Evaluative practice/quality assurance
Even though i
First People
Fraud
Gender
Genetics
Get off Gary Play man of the dog
Good practice
Guidance
Honesty
HREC
Human research ethics
Humanities
Institutional responsibilities
International
Journal
Justice
Links
Media
Medical research
Merit and integrity
Methodology
Monitoring
New Zealand
News
Online research
Peer review
Performance
Primary materials
Principles
Privacy
Protection for participants
Psychology
Publication ethics
Questionable Publishers
Research ethics committees
Research integrity
Research Misconduct
Research results
Researcher responsibilities
Resources
Respect for persons
Sample paperwork
sd
se
Serious Adverse Event
Social Science
SoTL
Standards
Supervision
Training
Vulnerability
x
Young people
Exclude news

Sort by

Animal Ethics Biosafety Human Research Ethics Research Integrity

Taking the pain out of data sharing – Nature (Mathew Hutson | October 2022)

Posted by Connar Allen in Human Research Ethics, Research Integrity on November 1, 2022
Keywords: Consent, Data management, Good practice, Human research ethics, Privacy, Respect for persons

The Linked Original Item was Posted On October 3, 2022

Team of Computer Engineers Lean on the Desk and Choose Printed Circuit Boards to Work with, Computer Shows Programming in Progress. In Background Technologically Advanced Scientific Research Center.

Despite agreeing to make raw data available, some authors fail to comply. The right strategies and platforms can ease the task.

Journals and funding bodies increasingly require manuscript authors to share data on request or make the information publicly available. It’s a big ask from a technical standpoint, but some straightforward strategies can simplify the process.

There are plenty of good reasons for you to share the data from a research project.  Amongst other things, they can increase the impact of your research and it can benefit your career.  There are also ethical arguments for data sharing, especially when the process of collecting/generating/accessing data has risks and/or burdens associated with it.  It does require you to anticipate the sharing in your application for research ethics review and in your consent material (accompanied with something like a opt-out tick box, so people can indicate that they consent in participating in your research project and separately indicate if they are happy for their data to be shared).  There are also considerable efficiencies and public good in such sharing.  This is why an increasing number of research funding bodies, institutions and publishers are calling for researchers to share their data.  This fantastic Nature piece discusses some of the practicalities.

Scientific papers rarely include all the data used to justify the conclusions, even in the supplementary material. Authors might fear getting scooped, or that other researchers will use the raw data to make fresh discoveries, or they might wish to protect the privacy of study participants. Or, more probably, authors have neither the time nor the expertise to package the data for others to view and understand.

Such reticence costs the research community. Data transparency allows others to repeat analyses and catch mistakes or fraudulent claims. It allows for new findings through the reanalysis of existing data sets, and it increases trust in the scientific process. In August, the White House Office of Science and Technology Policy announced that, by 2025, scientific data from all new federally funded research must be made accessible to the US public. And when submitting papers, authors are increasingly required to provide raw data to editors, to place data online or to include data-sharing statements as to whether they will offer data on request. Unfortunately, such policies are not bulletproof, as the largest study of its kind starkly documents.

In May, Livia Puljak, who studies evidence-based medicine at the Catholic University of Croatia in Zagreb, and her colleagues published a study in which they looked at the roughly 300 journals published by BioMed Central, an open-access publisher that is part of Springer Nature, which also publishes Nature. The researchers identified 1,792 manuscripts published in January 2019 that declared their data were available “on request” or “on reasonable request”1. In early 2021, they e-mailed the corresponding authors, asking for access to the raw data. To allay concerns that the study could produce embarrassing findings, they noted that the analysis would be anonymized: “We will not disclose any details about author characteristics,” they wrote.

Taking the pain out of data sharing
Despite agreeing to make raw data available, some authors fail to comply. The right strategies and platforms can ease the task.

Related Reading

(Australia) Australia does not want to share health data – Median Watch (Adrian Barnett | October 2022)

(New Zealand) Revisiting — Indigenous Knowledge and Research Infrastructure: An Interview with Katharina Ruckstuhl – Scholarly Kitchen (Alice Meadows | October 2022)

No evidence that mandatory open data policies increase error correction (Papers : Ilias Berberi & Dominique G. Roche | September 2022)

More Than Just Data Citation — An Interview With DataCite – Scholarly Kitchen (Alice Meadows | January 2022)

A proposal for data-sharing that discourages p-hacking – Bishop Blog (deevybee | June 2022)

Many researchers say they’ll share data — but don’t – Nature (Clare Watson | June 2022)

(Australia) Research Integrity – Needs and provision of training in Australian Institutions (Resources: Australian Academy of Sciences: June 2022)

(China) China expands control over genetic data used in scientific research – Nature (Smriti Mallapaty | May 2022)

What do participants think of our research practices? An examination of behavioural psychology participants’ preferences (Papers: Julia G. Bottesini. et al | April 2022)

In pursuit of data immortality – Nature (Michael Eisenstein | April 2022)

Time to recognize authorship of open data – Nature (Editorial | April 2022)

Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life (Ann M. Mc Cartney, et al | January 2022)

Revisiting: Is There a Business Case for Open Data? – Scholarly Kitchen (Tim Vines | August 2021)

The Responsible Use of Spatial Data – W3C Interest Group (Resource: Joseph Abhayaratna, et al | May 2021)

An ethics argument for data sharing

Poll results on co-authorship of papers using publicly available data – Dynamic Ecology (Jeremy Fox | November 2020)

Articles Are the Fundamental Unit of Data Sharing – Scholarly Kitchen (Tim Vines | September 2020)

The data-index: an author-level metric that values impactful data and incentivises data sharing (Pre-Print Paper: View OAmelia S C Hood & William J Sutherland | October 2020)

The Ethics and Politics of Qualitative Data Sharing

Google health-data scandal spooks researchers – Science (Heidi Ledford | November 2019)

Sample and data sharing barriers in biobanking: consent, committees, and compromises (Paper: Flora Colledge MA, et al | December 2013)

Data Management Expert Guide (Guidance: CESSDA | December 2017)

Ethics, Security and Privacy – the Bermuda Triangle of data management?

Data sharing and how it can benefit your scientific career – Nature (Gabriel Popkin | May 2019)

Better Metadata Could Help Save The World! – Scholarly Kitchen (Alice Meadows | June 2019)

Guest Post: Encouraging Data Sharing: A Small Investment for Large Potential Gain – Scholarly Kitchen (Rebecca Grant, et al | January 2019)

An idea to promote research integrity: adding badges to papers where the authors fought against the results being suppressed or sanitised – LSE Impact Blog (Adrian Barnett | July 2018)

Whitepaper: Practical challenges for researchers in data sharing (David Stuart, et al | September 2018)

Move clinical trial data sharing from an option to an imperative – STAT (Rebecca Li | February 2019)

The main obstacles to better research data management and sharing are cultural. But change is in our hands – LSE Blog (Marta Teperek and Alastair Dunning | November 2018)

Indigenous Data Sovereignty: University Institutional Review Board Policies and Guidelines and Research with American Indian and Alaska Native Communities (Papers: Tennille L. Marley | 2018)

Sensitive Data can be Shared (Michael Martin | 2014)

Conducting Research with Tribal Communities: Sovereignty, Ethics, and Data-Sharing Issues (Papers: Anna Harding, et al | 2011)

What factors do scientists perceive as promoting or hindering scientific data reuse? – LSE Impact Blog (Renata Gonçalves Curty, et al | March 2018)

Been scooped? A discussion on data stewardship – Musings on Quantitative Palaeoecology (Richard Telford | February 2018)

Who Owns Patient Data in Clinical Research? – CollabPx (Charlotte J. Haug | October 2017)

What incentives increase data sharing in health and medical research? A systematic review (Papers: Anisa Rowhani-Farid, et al | May 2017)

Afraid of Scooping; Case Study on Researcher Strategies against Fear of Scooping in the Context of Open Science (Papers: Heidi Laine | 2017)

Sharing Data and Materials in Psychological Science – Sage Journals (D. Stephen Lindsay | April 2017)

Integrating the Management of Personal Data Protection and Open Science with Research Ethics (Papers: David Lewis, et al | 2017)

Research Ethics and New Forms of Data for Social and Economic Research

Data Ownership Guidelines (Resources: Example from an Australian school of Applied Psychology | 2016)

We must urgently clarify data-sharing rules – Nature (Jan-Eric Litton | January 2017)

Publishing and sharing data papers can increase impact and benefits researchers, publishers, funders and libraries – LSE Impact Blog (Fiona Murphy | October 2016)

Beyond open data: realising the health benefits of sharing data – theBMJ (Elizabeth Pisani, et al September 2016)

Data availability statements and data citations policy: guidance for authors – NatureResearch (Guidelines/Policies)

How researchers lock up their study data with sharing fees – STAT (Ivan Oransky September 2016)

The Importance – and the Complexities – of Data Sharing (Papers: Jeffrey M. Drazen, M.D. et al 2016)

Announcement: Where are the data? – Nature

Addressing Global Data Sharing Challenges (Papers: George C. Alter Mary Vardigan 2015)

Consent and confidentiality in the light of recent demands for data sharing (Papers: Garrath Williams and Iris Pigeot )

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Related Links

Complaints against Research Ethics Monthly

Request a Takedown

Submission Guidelines

About the Research Ethics Monthly

About subscribing to the Research Ethics Monthly

A diverse group discussing a topic

Random selected image from the AHRECS library. These were all purchased from iStockPhoto. These are images we use in our workshops and Dr Allen used in the GUREM.

Research Ethics Monthly Receive copies of the Research Ethics Monthly directly
by email. We will never spam you.

  • Enter the answer as a word
  • Hidden
    This field is hidden and only used for import to Mailchimp
  • This field is for validation purposes and should be left unchanged.
  • Home
  • Services
  • About Us
  • Contact Us
  • Home
  • Services
  • About Us
  • Contact Us
  • Company
  • Terms Of Use
  • Copyright
  • Privacy Policy
  • Company
  • Terms Of Use
  • Copyright
  • Privacy Policy
  • Site Map
  • Site Map

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Facebook-f Twitter Linkedin-in