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Animal Ethics Biosafety Human Research Ethics Research Integrity

Brazilian ethics clash exposes science culture gap – SciDevNet (Carla Almeida May 2016)

Posted by saviorteam in Human Research Ethics on June 6, 2016
Keywords: Beneficence, Ethical review, Human research ethics, International, Methodology, Protection for participants, Research ethics committees, Researcher responsibilities, Respect for persons, Social Science
Two men in deep discussion over an open laptop

Speed read

Rules on human research mainly created for biomedical research

Social scientists pushed for changes so rules meet their needs

Political upheaval in Brazil looks set to delay new rules being signed off

Bureaucracy is an old enemy of Latin American science. The difficulty of importing research material — cell culture for example — and the maze of red tape that researchers must address are real obstacles. They can make research unviable and have slowed the progress of science in the region.

The past few years have seen various attempts to reduce bureaucracy. As part of this, Brazilian human and social scientists have pushed for changes in the ethical and legal framework of all types of research involving human beings, an issue that has caused discontent among these researchers.

The issue is not that they oppose the ethical principles, such as respect for human dignity and the protection of research subjects, which guide these regulations. Rather the point is that the rules, created primarily to regulate biomedical research, do not meet the specific needs of social science.

The main concern is that the system imposes the same rules for two different kinds of research: research into human beings, for example to develop and test new drugs, and research with human beings, which uses ethnography, observation and interviews to understand social behaviour.

The situation is aggravated by the entire system falling under the remit of the National Health Council, part of the ministry of health. Both the council and ministry are made up mainly of representatives from the medical sciences. As well as judging the ethical implications of research projects, the council has been judging their scientific merit too, and this includes projects outside the medical field and so outside their expertise.

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