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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Long-Term Agreement for Services (LTAS) for the Provision of Global Research Quality Assurance Services and an Ethical Review Facility for Evidence Generation (Request for proposal | August 2019)0

Posted by Admin in on August 13, 2019
 

UNICEF is putting out a call for tenders for a Global Ethical Review Facility for the organisation. This would entail undertaking ethical reviews of evidence generation projects across the organization and providing advice on possible mitigation strategies.

Information can be found here: https://www.ungm.org/public/Notice/95212

Gabrielle Berman, PhD
Senior Advisor – Ethics in Evidence Generation
UNICEF Innocenti
Via degli Alfani, 58
Firenze, Italia
50122
Skype: gabrielle.berman

A Russian Biologist Wants To Create More Gene-Edited Babies – NPR (Rob Stein | June 2019)0

Posted by Admin in on July 20, 2019
 

A Russian scientist says he wants to create more genetically modified babies, flouting international objections that such a step would be premature, unethical and irresponsible.

Denis Rebrikov, a molecular biologist who heads a gene-editing lab at the Kulakov National Medical Research Center for Obstetrics, Gynecology and Perinatology in Moscow, claims he has developed a safe — and therefore acceptable — way to create gene-edited babies.

“How it can be unethical if we will make [a] healthy baby instead of diseased?” Rebrikov told NPR during his first broadcast interview. “Why? Why [is it] unethical?”

Read the rest of this discussion piece

Infecting healthy people in vaccine research can be ethical and necessary – The Conversation (Michael Selgelid & Euzebiusz Jamrozik | June 2019)0

Posted by Admin in on July 1, 2019
 

Medical experiments involving intentionally infecting people with bacteria, viruses, and parasites are surprisingly common. And they are becoming more common worldwide, particularly in developing countries.

The ultimate aim of these “human challenge studies” is usually to test potential new vaccines.

However, because of the risks involved, this kind of research raises difficult ethical questions. For example, who should be infected? And which pathogens would be too dangerous to use?

Read the rest of this discussion piece

 

The Ethics of Social Research with Children and Families in Young Lives: Practical Experiences (Book: Virginia Morrow | 2009)0

Posted by Admin in on May 19, 2019
 

Preview
A great deal of attention is now paid to the ethics of social research. Research governance has expanded, and a burgeoning literature is emerging that describes the processes, practices and questions that arise in social research with children, families and communities. This paper outlines the approach taken to research ethics within Young Lives, a long-term study of childhood poverty in four developing countries. It describes some of the practical difficulties that Young Lives faces, and emphasises the importance of understanding local contexts in undertaking research with children and families in environments that are dynamic and may change rapidly from one year to the next, economically, environmentally and politically. The paper aims to contribute to current debates about research practices, the ethics of longitudinal research with children and research with communities in majority world contexts, in the spirit of shared enquiry and learning.

Morrow, Virginia (2012) ‘ The Ethics of Social Research with Children and Families in Young Lives: Practical Experiences’, in Jo Boyden and Michael Bourdillon (eds) Childhood Poverty. Multidisciplinary Approaches (pp.24-42). Basingstoke: Palgrave Macmilllan.
Book (Amazon): https://www.amazon.co.uk/Childhood-Poverty-Multidisciplinary-Approaches-Development/dp/0230319246
As a working paper: http://www.younglives.org.uk/sites/www.younglives.org.uk/files/YL-WP53-Morrow-EthicsOfResearchWithChildren.pdf

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