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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

African governments need to fund research ethics training – University World News (Paul Ndebele | April 2019)0

Posted by Admin in on April 24, 2019
 

There has been significant growth in international collaborative research implemented in Sub-Saharan Africa over the past three decades – funded mainly by the United States, United Kingdom, Germany, Japan and other nations. This growth has in part led to debates about the ethics of some of the research.

For example, during the late 1990s there were serious debates regarding use of placebos in research on HIV treatment when treatment outcomes were already known. Some commentators accused researchers from rich countries of using poor African countries to conduct research which they could not conduct in their own countries due to the stringent protections already in place. Additionally, several papers described the weak research oversight systems in several African countries.

In response, several research ethics capacity development programmes were initiated across Sub-Saharan Africa with the support of the World Health Organization, US National Institutes of Health, Wellcome Trust, Erasmus Mundus programme, pharmaceutical companies and others.

Read the rest of this discussion piece

The Foundation of Knowledge Production: Research Ethics Education in Taiwan (PowerPoint: Chien Chou | September 2018)0

Posted by Admin in on March 24, 2019
 

Outline

1. The Importance of Research Ethics
2. Researchers’Needs for Education
3. Education and Implementation Mechanism of Research Ethics in Taiwan’s Higher Education
4. Concluding Remarks

The Importance of research ethics

• Presents a baseline for all research behaviors
• Protects others, minimizes harm and increases the sum of good
• Supports trust among researchers and between research communities and the public
• Ensures research integrity and quality
• Satisfies organizational and professional demands • Copes with new and more challenging problems

Access Chien Chou’s presentation

Presenting and representing others: towards an ethics of engagement (Papers: Lucy Pickering and Helen Kara | February 2017)0

Posted by Admin in on March 14, 2019
 

Abstract
The ethics of research representation are rarely discussed. Yet representation can have a significant impact on research participants and audiences. This paper draws on some of the limited body of accounts of ethical challenges experienced in representing others in qualitative research. These accounts make clear that researchers often have to choose between ‘competing goods’ when representing others, such as participant control over what is presented and how, researchers’ ‘interpretive authority’, and whether and how to represent participants’ speech. These decisions frequently involve researchers choosing between ‘literal’ (empirical, evidence-based) and ‘real’ (authentic, experiential) truths. To resolve these dilemmas, some researchers are turning to creative methods of representation, such as poems, songs, plays and dance. Like all forms of representation, these methods require compromise: in particular, some detail, depth, or location may be sacrificed in return for accessible engagement with participants and wider audiences. Conversely, traditional methods of presentation may sacrifice some scope for engagement and accessibility in return for greater detail and depth. We argue that such sacrifices are a necessary component of all forms of qualitative representation and consequently require a reflexive approach to choices about representation. It is this reflexive approach which we argue constitutes an ethics of engagement.

Keywords
Ethics, presentation, representation, reflexivity, engagement

Pickering, L., and Kara, H. (2017) Presenting and representing others: towards an ethics of engagement. International Journal of Social Research Methodology, (doi:10.1080/13645579.2017.1287875)
https://core.ac.uk/download/pdf/77601396.pdf

Children in Social Research: Do Higher Payments Encourage Participation in Riskier Studies? (Stephanie Taplin, et al | February 2019)0

Posted by Admin in on February 18, 2019
 

Abstract

Full disclosure, columns on the advisory panel for this work, But this is a great paper with disciplinary application.

The MESSI (Managing Ethical Studies on Sensitive Issues) study used hypothetical scenarios, presented via a brief online survey, to explore whether payment amounts influenced Australian children and young people to participate in social research of different sensitivity. They were more likely to participate in the lower sensitivity study than in the higher at all payment levels (A$200 prize draw, no payment, $30, or $100). Offering payments to children and young people increased the likelihood that they would agree to participate in the studies and, in general, the higher the payments, the higher the likelihood of their participating. No evidence of undue influence was detected: payments can be used to increase the participation of children and young people in research without concerns of undue influence on their behavior in the face of relatively risky research. When considering the level of payment, however, the overriding consideration should be the level of risk to the children and young people.
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Keywords
children and adolescent, pediatrics, justice, participant selection, inclusion, recruitment, payment for research participation, research ethics, risks, benefits, and burdens of research, beneficence and nonmaleficence, vignette studies, decision-making capacity, surrogate decision makers, parental consent, child assent, voluntariness, coercion
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Taplin, S., Chalmers, J., Hoban, B., McArthur, M., Moore, T. and Graham, A. (2019) Research Ethics Committees’ Oversight of Biomedical Research in South Africa: A Thematic Analysis of Ethical Issues Raised During Ethics Review of Non-Expedited Protocols. Journal of Empirical Research on Human Research Ethics.
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