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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

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Respect for persons

(US) Suicide Hotline Left Ethics Board Out Of The Loop About Data-Sharing With For-Profit Spinoff – Forbes (Alexandra S. Levine | February 2022)

Crisis Text Line was an important service with an admirable mission.  It was worthy of the support it received from the tech sector.  But it is no surprise that ethical questions have been raised about the personal data shared with the commercial spin-off, Loris.  The arguments are: 1. The data does not contain personal identifiers.  2. They shared their plans in 2018.  3. Their privacy statement disclosed that there would be sharing.  But the matters raise the questions: (i) Does consent have a spirit that extends beyond a legal contract? (ii) Can an activity be ethical (as defined in ethics standards) and legal (as defined in privacy legislation) but still be in bad faith with participants?

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The words "CRISPR Babies" with a modified helix in the background.

(China) How to protect the first ‘CRISPR babies’ prompts ethical debate – Nature (Smriti Mallapaty | February 2022)

It would seem likely that the Centre would result in heightened State monitoring and intervention in the lives of these three children. This portends a life very different from other Chinese citizens. Some would argue that oversight is an inevitable consequence of He’s modification of their embryonic genomes.  It may be decades before we know if there will be any health consequences and whether they could be passed on to future offspring.  We have included links to 18 related items.

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A funny cartoon of organised crime thugs forcing partipant to sign a consent form.

Friday afternoon’s funny – How not to ethically conduct a consent strategy

There is a good reason why research ethics reviewers ask about where a consent strategy will be conducted, who will be administering the consent process and whether any implicate coercion will be used.  Hopefully, no one would ever use organised crime thugs to administer their consent strategy, in an isolated room and at least the impression that violence would follow if potential participants don’t ‘sign’.  That notwithstanding, part of you has to chuckle at Don Mayne’s conceit here.

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A traditional Māori design of a fearsome face.

(New Zealand) New Zealand professors in Māori science row quit Royal Society – Times Higher Education (John Ross | March 2022)

If the Royal Society (New Zealand) hoped that dropping the formal inquiry into the two academics (who wrote an open letter complaining they were required to talk about Māori beliefs and traditional practices with regard to medicine when conducting a talk about biomedicine) they badly misread the situation.  The two academics have very publically resigned from the Royal Society.   Rather than quietening down a loud and toxic argument, it seems the Royal Society has managed to inflame both sides.

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OAHU - CIRCA JUNE 2006 -Dancers dressed as warriors perform at the Polynesian Cultural Center circa June 2006 in Oahu. The Center will celebrate its 50th anniversary in 2013.

(New Zealand) Royal Society drops action against controversial letter writers – Times Higher Education (John Ross | March 2022)

With respect to the seven, and we are conscious we are White folk (mostly) from Australia commenting on a very sensitive New Zealand topic: It would be possible to show respect to mātauranga Māori (Māori knowledge) and still then cover the Western knowledge and understanding of the scientific topics to be covered in the learning activity.  Aotearoa New Zealand has a treaty (The Treaty of Waitangi), which establishes clear expectations in this regard. Future professional practitioners need to understand this knowledge to understand the frame from which a significant proportion of their clients approach the topics.  This is the reality of practicing in a country with a strong First People tradition.  It is high time Australia had something similar.

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