ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Resource Library

Research Ethics MonthlyAbout Us

ResourcesInternational

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Challenges and Responsibilities of Social Research in Africa: Ethical Issues (Book: Apollo Rwomire & Francis Nyamnjoh 2007)0

Posted by Admin in on May 31, 2015
 

BOOK: Rwomire, Apollo, & Nyamnjoh, Francis B., 1961- & Organization for Social Science Research in Eastern and Southern Africa (2007). Challenges and responsibilities of social research in Africa : ethical issues. Organisation for Social Science Research in Eastern and Southern Africa, Addis Ababa, Ethiopia

ABOUT
“Reviewed by SHERIDAN GRISWOLD (Originally published in Mmegi Online)

Challenges and Responsibilities of Social Research in Africa: Ethical Issues is a collection of 21 essays that should be of interest to a variety of people, including researchers and consumers of research.

Its editors are well known in Botswana. Apollo Rwomire, a Ugandan, has taught in the Department of Social Work at the University of Botswana (UB) since 1993. His recent books include Social Problems in Africa (2001) and Human Impact on Environment and Sustainable Development in Africa (2003).

Francis B Nyamnjoh, a Cameroonian, is an anthropologist and sociologist who has written five works of fiction including The Disillusioned African (1995) and The Travails of Dieudonne (2008). His academic books span topics as diverse as sexuality, xenophobia, democracy, the media and Magical Interpretations, Material Realities (2001).”

See more at: http://www.nyamnjoh.com/2010/02/the-ethics-of-research-on-human-subjects-in-africa.html#sthash.RLEAK0je.dpuf

Indigenous peoples and the morality of the Human Genome Diversity Project (Paper: Michael Dodson, Robert Williams 1999)0

Posted by Admin in on May 31, 2015
 

PAPER: Dodson, M., & Williamson, R. (1999). Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics, 25(2), 204-208.

ABSTRACT
In addition to the aim of mapping and sequencing one human’s genome, the Human Genome Project also intends to characterise the genetic diversity of the world’s peoples. The Human Genome Diversity Project raises political, economic and ethical issues. These intersect clearly when the genomes under study are those of indigenous peoples who are already subject to serious economic, legal and/or social disadvantage and discrimination. The fact that some individuals associated with the project have made dismissive comments about indigenous peoples has confused rather than illuminated the deeper issues involved, as well as causing much antagonism among indigenous peoples. There are more serious ethical issues raised by the project for all geneticists, including those who are sympathetic to the problems of indigenous peoples. With particular attention to the history and attitudes of Australian indigenous peoples, we argue that the Human Genome Diversity Project can only proceed if those who further its objectives simultaneously: respect the cultural beliefs of indigenous peoples; publicly support the efforts of indigenous peoples to achieve respect and equality; express respect by a rigorous understanding of the meaning of equitable negotiation of consent, and ensure that both immediate and long term economic benefits from the research flow back to the groups taking part.

International Journal for Internet Research Ethics0

Posted by Admin in on May 30, 2015
 

“The IJIRE is the first peer-reviewed online journal, dedicated specifically to cross-disciplinary, cross-cultural research on Internet Research Ethics. All disciplinary perspectives, from those in the arts and humanities, to the social, behavioral, and biomedical sciences, are reflected in the journal.

With the emergence of Internet use as a research locale and tool throughout the 1990s, researchers from disparate disciplines, ranging from the social sciences to humanities to the sciences, have found a new fertile ground for research opportunities that differ greatly from their traditional biomedical counterparts. As such, “populations,” locales, and spaces that had no corresponding physical environment became a focal point, or site of research activity. Human subjects protections questions then began to arise, across disciplines and over time: What about privacy? How is informed consent obtained? What about research on minors? What are “harms” in an online environment? Is this really human subjects work? More broadly, are the ethical obligations of researchers conducting research online somehow different from other forms of research ethics practices?

As Internet Research Ethics has developed as its own field and discipline, additional questions have emerged: How do diverse methodological approaches result in distinctive ethical conflicts – and, possibly, distinctive ethical resolutions? How do diverse cultural and legal traditions shape what are perceived as ethical conflicts and permissible resolutions? How do researchers collaborating across diverse ethical and legal domains recognize and resolve ethical issues in ways that recognize and incorporate often markedly different ethical understandings?”

U.S. Office for Human Research Protections (OHRP)0

Posted by Admin in on May 30, 2015
 

“The Office for Human Research Protections (OHRP) provides leadership in the protection of the rights, welfare, and wellbeing of subjects involved in research conducted or supported by the U.S. Department of Health and Human Services (HHS). OHRP helps ensure this by providing clarification and guidance, developing educational programs and materials, maintaining regulatory oversight, and providing advice on ethical and regulatory issues in biomedical and social-behavioral research.”

The information available from the OHRP web site includes:

  • fact sheets;
  • regulations;
  • policies and guidelines;
  • education;
  • resources;
  • news; and
  • archived material.

0