ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Resource Library

Research Ethics MonthlyAbout Us

ResourcesHuman research ethics

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

The ethics of New Development Economics: is the Experimental Approach to Development Economics morally wrong? (Papers: Stéphane J. Baele)0

Posted by Admin in on May 21, 2019
 

Abstract:
The 2000s have witnessed the arrival and growing popularity of randomized controlled experiments (RCTs) in Development Economics. Whilst this new way of conducting research on development has unfolded important insights, the ethical challenge it provokes has not yet been systematically examined. The present article aims at filling this gap by providing the first ad hoc discussion of the moral issues that accompany the use of RCTs in Development Economics. Claiming that this new research agenda needs its own, specific set of ethical guidelines, we expose the six ethical problems that these experiments potentially provoke and that should therefore be carefully assessed by ethics committees before an RCT is launched and by scholarly journals before its results are published.

Keywords:
Development Economics, ethics, RCTs, experiments

Baele, Stéphane J. (2013) ‘The ethics of New Development Economics: is the Experimental Approach to Development Economics morally wrong?’, The Journal of Philosophical Economics, VII:1
Publisher (Open Access): https://jpe.ro/?id=revista&p=291&cuprins=vizibil

The Ethics of Social Research with Children and Families in Young Lives: Practical Experiences (Book: Virginia Morrow | 2009)0

Posted by Admin in on May 19, 2019
 

Preview
A great deal of attention is now paid to the ethics of social research. Research governance has expanded, and a burgeoning literature is emerging that describes the processes, practices and questions that arise in social research with children, families and communities. This paper outlines the approach taken to research ethics within Young Lives, a long-term study of childhood poverty in four developing countries. It describes some of the practical difficulties that Young Lives faces, and emphasises the importance of understanding local contexts in undertaking research with children and families in environments that are dynamic and may change rapidly from one year to the next, economically, environmentally and politically. The paper aims to contribute to current debates about research practices, the ethics of longitudinal research with children and research with communities in majority world contexts, in the spirit of shared enquiry and learning.

Morrow, Virginia (2012) ‘ The Ethics of Social Research with Children and Families in Young Lives: Practical Experiences’, in Jo Boyden and Michael Bourdillon (eds) Childhood Poverty. Multidisciplinary Approaches (pp.24-42). Basingstoke: Palgrave Macmilllan.
Book (Amazon): https://www.amazon.co.uk/Childhood-Poverty-Multidisciplinary-Approaches-Development/dp/0230319246
As a working paper: http://www.younglives.org.uk/sites/www.younglives.org.uk/files/YL-WP53-Morrow-EthicsOfResearchWithChildren.pdf

China tightens its regulation of some human gene editing, labeling it ‘high-risk’ – Science (Dennis Normile | February 2019)0

Posted by Admin in on May 19, 2019
 

In the wake of the shocking news that one of its scientists had produced genetically altered babies, the Chinese government this week issued draft regulations that would require national approval for clinical research involving gene editing and other “high-risk biomedical technologies.” Although some Chinese researchers welcome the move to tighten oversight, there are worries that the rules could impose a burden on areas of genetic research that are not so controversial.

“I am happy to see the national regulations regarding new biomedical technologies; I think this makes relevant policy more clear,” says Wei Jia, a medical oncologist who is involved with an ongoing trial using gene editing to modify cancer patient T-cells at the Affiliated Nanjing Drum Tower Hospital of Nanjing University Medical School in China.

The regulations are in response to the late November 2018 claim by He Jiankui, then of Southern University of Science and Technology in Shenzhen, China, that he had altered the DNA embryos in a way that would give the babies and their descendants resistance to HIV. This approach is called germline engineering—it can involve changing DNA in embryos or sperm or eggs—and is banned in many countries, by law or regulation. He’s effort, using a technique called CRISPR, resulted in twin girls born last fall; one more baby, he said, is on the way. The experiment earned He worldwide condemnation for prematurely using a still glitchy technique that might negatively affect the babies’ development and health in a medically unnecessary and unjustified intervention.

Read the rest of this discussion piece

Remains of dissected Nazi prisoners to be laid to rest in Berlin – The Guardian (Philip Oltermann | May 2019)0

Posted by Admin in on May 16, 2019
 

Microscopic tissue samples, kept by controversial anatomist, were found in 2016

The microscopic remains of political prisoners executed by the Nazis and dissected by a controversial anatomist are to be buried in Berlin on Monday, more than seven decades after the end of the second world war.

About 300 tissue samples, each one no more than a hundredth of a millimetre thin and one square centimetre in size, were discovered in 2016 by descendants of Hermann Stieve, a former director of the Berlin Institute of Anatomy who specialised in research into the female reproductive system.

Though Stieve was not a member of the Nazi party, he developed a relationship with the regime whereby he was allowed to do research on recently executed political prisoners in return for helping to obliterate any traces of their remains.

Read the rest of this news story

0