ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)
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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

(Canada) Learning to be refused: exploring refusal, consent and care in storytelling research (Papers: May Chazan & Melissa Baldwin | July 2020)0

Posted by Admin in on July 14, 2020

In 2018 in Nogojiwanong (Peterborough, Canada), we invited 17 activists, artists, and academics to share stories of intergenerational memory work – including land-based practices, ceremony, arts, and archiving – as ways of resisting erasure and making change. We grounded this research-generation workshop, Manifesting Resistance: Intergenerational Memory Work across ‘the Americas’, in storytelling from our gathering place, on Michi Saagiig territory; our methods included guided conversations, small group interviews, collaborative media making, and embodied workshops. As two settler researchers on a research team of eight (of different backgrounds, career stages, ancestries, and connections to Turtle Island (North America)), we centred a relational research ethics, drawing from feminist and postcolonial writings on anti-oppressive research and decolonial writings on refusal, relationality, and care. Despite our critical intentions, this research process was ethially complex. Drawing on fieldnotes and recordings, and inspired by scholars like Audra Simpson, we explore two key expressions of research refusal, how and why participants refused this research, and the connections between being refused and gaining consent. We illustrate how these research refusals generated critical knowledges, communities, processes, and spaces, and how negotiating consent in the context of these refusals (by slowing down, listening, and shifting our process) offered important challenges to institutional ethics.

Consent, research refusal, decolonial methodologies, relational ethics, indigenous-settler relations

Chazan, M. & Baldwin, M. (2020) Learning to be refused: exploring refusal, consent and care in storytelling research. Postcolonial Studies.  DOI 10.1080/13688790.2020.1781324

Ethical Procedures? A Critical Intervention: The sacred, the profane, and the planet (Papers: Keyan Tomaselli | 2017))0

Posted by Admin in on February 13, 2020

Issues relating to ethical clearance, how these procedures relate to very different ontologies, ways of making sense, conditions of existence, and the ideological implications thereof are critically discussed. Written as an invited intervention, the author takes readers through a variety of paradigms: indigenous approaches involving the sacred and the profane, instrumentalization of research; multispeciesism and research as a lived practice. Comments are offered on the nature of science and some questions are posed on the contradictions of ethical practices that readers encounter. The method is eclectic, read through a Peirceian pragmatism, and the outcome proposes relationality rather than the inevitability of discrete findings. Some conclusions are offered on the geographical distribution of populations sampled.

Ethical clearance; indigenous methods; multispeciesism; fieldwork, pragmatism

Tomaselli, Keyan. (2017). Ethical Procedures? A Critical Intervention: The sacred, the profane, and the planet. The Ethnographic Edge. 1. 3. 10.15663/tee.v1i1.21

Global Code of Conduct for Research in Resource-Poor Settings (TRUST Resource | May 2018)0

Posted by Admin in on February 11, 2020

Access by researchers to any biological or agricultural resources, human biological materials, traditional knowledge, cultural artefacts or non-renewable.

A useful TRUST resource to guide international research (of any discipline) that is conducted in poor settings. The resource includes 18 articles.

Global Code of Conduct for Research in Resource-Poor Settings. This Global Code of Conduct for Research in Resource-Poor Settings counters ethics dumping by: providing guidance across all research disciplines. presenting clear, short statements in simple language to achieve the highest possible accessibility.

ThisGlobalCodeofConductforResearchin Resource-Poor Settings counters ethics dumping by:

• Providing guidance across all research disciplines

Access the resource

Australian biobank repatriates hundreds of ‘legacy’ Indigenous blood samples – Science (Dyani Lewis | December 2019)0

Posted by Admin in on January 28, 2020

The return is part of a groundbreaking approach that could inspire other institutions grappling with how to use historical samples ethically in research.

Last month, the Galiwin’ku community of Elcho Island off the coast of northern Australia celebrated the return of more than 200 vials of blood that were collected from their ancestors half a century ago, before modern research principles on informed consent existed. Unbeknownst to the Galiwin’ku community, the blood vials had been in freezers at the Australian National University in Canberra ever since.

It is great to see community activism and voice finally achieve an ethical outcome on a historical wrong.

Many Indigenous Australian communities believe that the remains of their people, including blood and hair, must return to their ancestral home, or Country, to be at peace. Having the blood vials returned “meant a lot to us”, says Ross Mandi Wunungmurra, chair of the Yalu Aboriginal Corporation, the community organization that helped negotiate the samples’ return. Mandi is one of several hundred living community members whose own blood was collected after a typhoid outbreak in 1968.

Before the samples of the deceased were repatriated, the relatives gave permission for DNA to be extracted from the blood, while those still alive offered fresh samples. The genetic information will be stored in the biobank of the National Centre for Indigenous Genomics (NCIG), which the Australian National University (ANU) established specifically to manage its historical samples.

Read the rest of this discussion piece