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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Ethical relationships, ethical research in Aboriginal contexts: Perspectives from central Australia0

Posted by Admin in on November 18, 2018
 

Learning Communities International Journal of Learning in Social Contexts
Special issue: Ethical relationships, ethical research in Aboriginal contexts: Perspectives from central Australia

Number 23 – November 2018

CONTENTS
Introduction to Special Issue: Being here matters …2
Barry Judd

Editorial….12
Al Strangeways

“You helped us and now we’re going to all help you”: What we learned about how to do research together …16
Lisa Hall, Linda Anderson, Fiona Gibson, Mona Kantawara, Barbara Martin and Yamurna Oldfield

Ngapartji ngapartji ninti and koorliny karnya quoppa katitjin (Respectful and ethical research in central Australia and the south west) …32
Jennie Buchanan, Len Collard and Dave Palmer

Researching together: Reflections on ethical research in remote Aboriginal communities …52
Tessa Benveniste and Lorraine King

The dancing trope of cross-cultural language education policy…64
Janine Oldfield and Vincent Forrester

Different monsters: Traversing the uneasy dialectic of institutional and relational ethics …76
Al Strangeways and Lisa Papatraianou

Research for social impact and the contra-ethic of national frameworks…92
Judith Lovell Altyerre

NOW: Arrernte dreams for national reconstruction in the 21st century …106
Joel Liddle Perrurle and Barry Judd

The making of Monstrous Breaches: An ethical global visual narrative…116
Judith Lovell and Kathleen Kemarre Wallace

Read  the special edition

Research ethics, informed consent and the disempowerment of First Nation peoples (Papers: Juan M Tauri | 2017)0

Posted by Admin in on November 14, 2018
 

Abstract
Recently, Indigenous commentators have begun to analyse the way in which institutional Research Ethics Boards (REBs) engage with Indigenous researchers and participants, respond to Indigenous peoples’ concerns with academic research activities, and scrutinise the ethics proposals of Indigenous scholars. Of particular concern for Indigenous commentators is that the work of REBs often results in the marginalisation of Indigenous approaches to knowledge construction and dissemination, especially in relation to the vexed issue of informed consent. Based on analysis of the results of research with Indigenous researchers and research participants, this paper argues that institutionalised REBs’ preference for ‘universal’ and ‘individualised’ approaches for determining ethical research conduct marginalises Indigenous approaches to ethical research conduct. The paper concludes by calling for a decolonisation of REB processes through recognition of the validity of communal processes for attaining the informed consent of Indigenous research participants.

Keywords First Nations, research ethics boards, informed consent, decolonisation

Tauri, J. M. (2018). Research ethics, informed consent and the disempowerment of First Nation peoples. Research Ethics, 14(3), 1–14. https://doi.org/10.1177/1747016117739935
Publisher (Open Access): https://journals.sagepub.com/doi/full/10.1177/1747016117739935

Code Of Research Ethics in the University of Malaya0

Posted by Admin in on November 3, 2018
 

The start of this institutional human research ethics policy is very much standard fare, then it takes a decidedly unexpected turn. It’s always important to be wary of cultural imperialism but some things are startling enough to warrant comment.

“1. All research conducted by staff and students of the university involving human participants and the use of vertebrate animal subjects must be referred to the appropriate ethics committee.
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2. These include all research, qualitative or quantitative, regardless of whether the research is funded by internal/external grants or even unfunded.
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3. All research conducted by staff and students must follow codes of ethical guidelines for research involving human participants which include:”
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a) Sources of Data – The participant is subject to ethical clearance, meaning the researcher must define whether the data involves new data collection or existing data and how the data will be collected.

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Access the institutional policy

Vulnerability in Research: Defining, Applying, and Teaching the Concept (Books: Sana Loue & Bebe Loff | 2019)0

Posted by Admin in on November 1, 2018
 

Abstract
The concept of vulnerability and the attendant responsibility of researchers to provide special protections for research participants deemed to be vulnerable are considered to be foundational concepts in bioethics. However, not only do international and national guidelines differ in their definition of vulnerability, but they also vary with respect to who is to be considered vulnerable in research. This chapter describes the ways in which vulnerability has been defined by international and national guidelines, discusses the considerations deemed relevant by international and national guidance and writers on the topic, and concludes with thoughts on how the meaning of vulnerability might be communicated in teaching.

Sana Loue & Bebe Loff (2019) Vulnerability in research: defining, applying, and teaching the conceptEthics in Research Practice and Innovation
https://www.igi-global.com/chapter/vulnerability-in-research/216663