ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)
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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Research Ethics for Social Scientists: Between Ethical Conduct and Regulatory Compliance (Book: Mark Israel and Iain Hay 2006)0

Posted by Admin in on May 31, 2015

BOOK: Israel, Mark. & Hay, Iain M.  (2006).  Research ethics for social scientists : between ethical conduct and regulatory compliance.  London :  Sage Publications

“Ethics is becoming an increasingly prominent issue for all researchers across the western world. This comprehensive and accessible guide introduces students to the field and encourages knowledge of research ethics in practice. Research Ethics for Social Scientists sets out to do four things: The first is to demonstrate the practical value of thinking seriously and systematically about what constitutes ethical conduct in social science research. Second, the text identifies how and why current regulatory regimes have emerged. Third, it seeks to reveal those practices that have contributed to the adversarial relationships between researchers and regulators. Finally, the book hopes to encourage both parties to develop shared solutions to ethical and regulatory problems.”

Challenges and Responsibilities of Social Research in Africa: Ethical Issues (Book: Apollo Rwomire & Francis Nyamnjoh 2007)0

Posted by Admin in on May 31, 2015

BOOK: Rwomire, Apollo, & Nyamnjoh, Francis B., 1961- & Organization for Social Science Research in Eastern and Southern Africa (2007). Challenges and responsibilities of social research in Africa : ethical issues. Organisation for Social Science Research in Eastern and Southern Africa, Addis Ababa, Ethiopia

“Reviewed by SHERIDAN GRISWOLD (Originally published in Mmegi Online)

Challenges and Responsibilities of Social Research in Africa: Ethical Issues is a collection of 21 essays that should be of interest to a variety of people, including researchers and consumers of research.

Its editors are well known in Botswana. Apollo Rwomire, a Ugandan, has taught in the Department of Social Work at the University of Botswana (UB) since 1993. His recent books include Social Problems in Africa (2001) and Human Impact on Environment and Sustainable Development in Africa (2003).

Francis B Nyamnjoh, a Cameroonian, is an anthropologist and sociologist who has written five works of fiction including The Disillusioned African (1995) and The Travails of Dieudonne (2008). His academic books span topics as diverse as sexuality, xenophobia, democracy, the media and Magical Interpretations, Material Realities (2001).”

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Indigenous peoples and the morality of the Human Genome Diversity Project (Paper: Michael Dodson, Robert Williams 1999)0

Posted by Admin in on May 31, 2015

PAPER: Dodson, M., & Williamson, R. (1999). Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics, 25(2), 204-208.

In addition to the aim of mapping and sequencing one human’s genome, the Human Genome Project also intends to characterise the genetic diversity of the world’s peoples. The Human Genome Diversity Project raises political, economic and ethical issues. These intersect clearly when the genomes under study are those of indigenous peoples who are already subject to serious economic, legal and/or social disadvantage and discrimination. The fact that some individuals associated with the project have made dismissive comments about indigenous peoples has confused rather than illuminated the deeper issues involved, as well as causing much antagonism among indigenous peoples. There are more serious ethical issues raised by the project for all geneticists, including those who are sympathetic to the problems of indigenous peoples. With particular attention to the history and attitudes of Australian indigenous peoples, we argue that the Human Genome Diversity Project can only proceed if those who further its objectives simultaneously: respect the cultural beliefs of indigenous peoples; publicly support the efforts of indigenous peoples to achieve respect and equality; express respect by a rigorous understanding of the meaning of equitable negotiation of consent, and ensure that both immediate and long term economic benefits from the research flow back to the groups taking part.

Genetic Research in Aboriginal and Torres Strait Islander Communities: Beginning the Conversation (Paper: Emma Kowal et al 2011)0

Posted by Admin in on May 31, 2015

Paper: Kowal, E., Rouhani, L., & Anderson, I. (2011). Genetic research in Aboriginal and Torres Strait Islander communities: Beginning the conversation.

PREFACE (Excerpt):
Genetics is at the forefront of medical research, but it is rarely used in Indigenous health research projects. In the past, proposals to conduct genetic studies in Aboriginal and Torres Strait Islander communities in Australia have been highly criticised and rarely funded. However, genetic researchers worldwide argue that genetics has the potential to reduce health disparities (including Indigenous health disparities) in multiple ways: through understanding disease pathogenesis, using genetics to probe environmental risk, predicting disease risk, finding novel diagnostics and drug targets, and pharmacogenomics.

Understandably, many Indigenous people interpret genetic research in the context of their experiences of colonisation. Multiple fears constitute barriers to effective research partnerships between Indigenous communities and genetic researchers. These concerns include genetic theft or ‘biopiracy’, that genetics will be used to determine Aboriginality and may fuel racism, of poor access to potential health care innovations, of bad experiences of the Human Genome Diversity Project (known by some as the ‘Vampire’ project) and of struggles over access to deoxyribonucleic acid (DNA) extracted from human remains.