ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)
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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Research Ethics and Indigenous Communities (Papers: Annie Belcourt et al 2013)0

Posted by Admin in on April 2, 2016
 

Abstract: Institutional review boards (IRBs) function to regulate research for the protection of human participants. We share lessons learned from the development of an intertribal IRB in the Rocky Mountain/Great Plains Tribal region of the United States.

We describe the process through which a consortium of Tribes collaboratively developed an intertribal board to promote community-level protection and participation in the research process. In addition, we examine the challenges of research regulation from a Tribal perspective and explore the future of Tribally regulated research that honors indigenous knowledge and promotes community accountability and transparency.

We offer recommendations for researchers, funding agencies, and Tribal communities to consider in the review and regulation of research.

Kelley A, Belcourt-Dittloff A, Belcourt C, and Belcourt G. (2013) Research Ethics and Indigenous Communities. American Journal of Public Health: December 2013, Vol. 103, No. 12, pp. 2146-2152.
doi: 10.2105/AJPH.2013.301522

Publisher: http://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2013.301522

Annie Belcourt also delivered a paper on this to the 142nd Annual Meeting and Expo of the American Public Health Association (APHA) on 17 Nov 2014. A recording of this presentation is available for purchase.

The vulnerable object of Indigenous research ethics (Papers: Emma Kowal 2014)0

Posted by Admin in on March 30, 2016
 

Excerpt: The origin story of Indigenous health research ethics, like many tales of regulation, begins in a meeting room. In this case it was the Araluen Centre, Alice Springs in 1986, the site of the first conference on Aboriginal health organized by the National Health and Medical Research Council (NHMRC) and the newly established Menzies School of Health Research. At that point, research ethics review was still in its institutional infancy. Although the first Statement on Human Experimentation was published by the NHMRC in the mid-1960s, it was not until 1973 that ethics committees were first mentioned, at which time there were few in existence. Only in 1985 did the NHMRC require that all human research be approved by an ethics committee. The final day of that Alice Springs conference was famously ‘taken over’ by Aboriginal people who tabled a list of 87 recommendations, foremost among them the need for separate ethical guidelines for Indigenous health research (Humphery 2002). The first guidelines followed in 1991, followed by the most recent version in 2003 (which is currently under review). Those events in the mid-1980s set the pattern for a separate system of Indigenous health research running parallel to mainstream research. Researchers working in Indigenous health tend to do it exclusively from the start of their career. They develop expertise in the language and processes of the field. Those outside the established groups of Indigenous health researchers are likely to intentionally exclude Indigenous research participants to avoid being drawn in to the Indigenous- specific process of NHMRC grant review.

Kowal Emma (2014) The vulnerable object of Indigenous research ethics. The Australian Journal of Anthropology 25 (3): 390-392
Publisher: http://onlinelibrary.wiley.com/doi/10.1111/taja.12109_9/abstract

Research ethics training on place-based communities and cultural groups (Dianne Quigley, et al 2015)0

Posted by Admin in on March 28, 2016
 

Abstract: Funded by the National Science Foundation’s Ethics Education in Science and Engineering program, the Northeast Ethics Education Partnership (NEEP) has developed and implemented expanded human subjects training for graduate student researchers and faculty engaging with individuals and groups representing place-based communities and cultural groups. This paper reports on the importance of training graduate students in a series of short courses in environmental science, environmental engineering, and related fields including environmental studies, with an emphasis on research ethics involving place-based communities, cultural competence, and community-based research. New course content, recruitment, implementation strategies, and outcomes for this training effort at the two partnering universities are provided for this initiative

Keywords
Research ethics Group protections Cultural competence Culturally appropriate research Community-based environmental research

Quigley D, Sonnenfeld D, Brown P, Silka L, He L and Tian Q (2015) Research ethics training on place-based  communities and cultural groups. Journal of Environmental Studies and Sciences. DOI: 10.1007/s13412-015-0236-x . pp 1-11
Publisher: http://link.springer.com/article/10.1007%2Fs13412-015-0236-x

When the Anths Come Marching In (Papers: Michelle Trudgett and Susan Page 2014)0

Posted by Admin in on March 28, 2016
 

Excerpt: This essay provides a first-hand account of why it is important to have Indigenous representation on Human Research Ethics Committees (HRECs), and more importantly why some research simply should not go ahead. Collectively we have 10 years experience serving on HRECs, extensive Indigenous Higher Education research, as well as our lived experience as Indigenous Australians. Despite such experience and expertise, we find ourselves too often in the firing lines of unhappy researchers whose breathtaking sense of entitlement underlines their claims to ‘know’ a particular community. As a noted Native American scholar notes in relation research on Indigenous peoples:
We have been observed, noted, taped, and videoed. Our behaviors have been recorded in every possible way known to Western Science, and I suppose we could learn to live with this if we had not become imprisoned in the anthropologist’s words. The language that anthropologists use to explain us traps us in linguistic cages because we must explain our ways through alien hypothetical constructs and theoretical frameworks (King 2012: 207).

Trudgett M and Page S (2014) When the Anths Come Marching In. The Australian Journal of Anthropology 25 (3): 388-390
Publisher: http://onlinelibrary.wiley.com/doi/10.1111/taja.12109_8/abstract

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