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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Indigenous Research across Continents: A Comparison of Ethically and Culturally Sound Approaches to Research in Australia and Sweden (Books: Kristina MacNeil and Jillian Marsh 2015)0

Posted by Admin in on February 29, 2016

Abstract: In the context of opposition to, or absence of, ethical engagement in Indigenous research, researchers are morally obligated to make a stand that ensures their engagement strategy and implementation plan uses an approach based on positionality, participation, mutual respect, and partnership. Whilst this may involve new challenges for the researcher, such an initiative maximises the likelihood of an empowering and culturally
safe process for vulnerable participants, including inexperienced researchers. As two early career researchers, we reflect on our experiences amidst some of the challenges within Indigenous research. These challenges include ethical, methodological and structural issues. The main aims of this chapter are to advocate for practical and philosophical reform of Indigenous research ethics particularly in the context of decolonisation; ultimately
to maximise the benefits of research primarily for community research participants, service providers, and policy makers as opposed to primarily for the academy. The authors’ experiential and theoretical knowledge enables a critical understanding of the philosophical underpinnings of a decolonising research approach and how this guides the development of an appropriate ethics protocol. We acknowledge that research impacts on Indigenous peoples’ lives, often in a negative or unintended manner, and its governance varies dramatically according to individual as well as institutional values that are steeped in Western thought including colonialism. This paper draws on scholarly theoretical knowledge of cultural
protocols and the governance of ethical processes from international and local sources, as well as our own experiences in cross-cultural communication to articulate what we call a Decolonising Standpoint. We regard this as a necessary addition to the implementation of an
Indigenous Standpoint in the context of research, which has provided a highly credible philosophy and practice for Indigenous researchers. We aim to create an additional and quite distinct position that non-Indigenous researchers can add to their repertoire of skills and knowledge in the context of Indigenous research.

MacNeil K. Marsh, J. (2015). Indigenous Research across Continents: A Comparison of Ethically and Culturally Sound Approaches to Research in Australia and Sweden.In Huijser, H., Ober, R., O’Sullivan, S. McRae-Williams, E & Elvin, R. (Ed.) Finding the Common Ground: Narratives, Provocations and Reflections from the 40 Year Celebration of Batchelor Institute. (pp119-126) Batchelor Press, NT.
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Marginalized Populations and Research Ethics Online (Papers: Oliver Haimson 2015)0

Posted by Admin in on February 28, 2016

Abstract: To respectfully and accurately represent marginalized peoples’ experiences in online communities research, great care must be taken to ethically approach such research. In this position paper, we explore and ask questions about the ethical gray areas that occur when studying marginalized groups online. We argue that greater input and feedback from members of study populations, during the research and the peer review process, could help marginalized communities by increasing accurate and respectful representations of group members’ experiences and by improving design recommendations that come from research results. We offer several suggestions going forward for CSCW online communities researchers.

Haimson O, Ringland K & . (2015, March 16). Marginalized Populations and Research Ethics Online. Paper presented at CSCW Workshop on Ethics for Studying Sociotechnical Systems in a Big Data World.

The Politicisation of Ethics Review in New Zealand (Book: Martin Tolich and Barry Smith 2015)0

Posted by Admin in on February 14, 2016

Description: The National Women’s Hospital research scandal saw women being involved in medical research without their knowledge and without the opportunity to make a choice about their participation. The 1988 Cartwright Inquiry into this decades-long study established a template for ethics review in New Zealand. Ethics committees were subsequently established to independently evaluate the potential benefits as well as the risks of research.

This book traces the gradual undermining of the independence of ethics review in New Zealand and the politicisation of ethics committees between 1988 and 2014. There have been substantial changes in this review process brought about by government in response to other medical crises such as that which occurred in Gisborne in the late 1990s and then an “economic crisis” between 2008 and 2010 that involved international pharmaceutical companies.

This book explores the implications of these changes for a robust ethics review process across research environments in New Zealand, especially those affecting Maori. It includes recommendations aimed at enhancing independent ethics review, best practice, and providing adequate protection for all citizens.

Tolich, M. & Smith, B. (2015). The Politicisation of Ethics Review in New Zealand. Auckland: Dunmore. 241 pages.

Applying “Place” to Research Ethics and Cultural Competence/Humility Training (Papers: Dianne P Quigley 2016)0

Posted by Admin in on February 4, 2016

Abstract: Research ethics principles and regulations typically have been applied to the protection of individual human subjects. Yet, new paradigms of research that include the place-based community and cultural groups as partners or participants of environmental research interventions, in particular, require attention to place-based identities and geographical contexts. This paper argues the importance of respecting “place” within human subjects protections applied to communities and cultural groups as part of a critical need for research ethics and cultural competence training for graduate research students. These protections and benefits are extensions of the Belmont Principles and have been included in recent recommendations from research regulatory committees.

Keywords: Human subjects Beneficence Justice Group protections Cultural competence Community-based research Bioethical principles

Quigley D (2016) Applying “Place” to Research Ethics and Cultural Competence/Humility Training. Journal of Academic Ethics March 2016, Volume 14, Issue 1, pp 19-33 (First online 13 January 2016, Accessed 5 February)