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Bioethics

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Futuristic laboratory equipment - coronavirus testing. Computer screens in laboratory. DNA models and coronavirus research

(US) National Academies calls for transforming use of racial and ethnic labels in genetics research – Stat (Usha Lee McFarling | March 2023)

We don’t often think in terms of how research affects society or groups in society. But if we don’t give it a thought, research can have serious consequences and can negatively affect groups. Often the most vulnerable and socially isolated are the most seriously impacted. This story relates to a call by scientific academies for a change to the way genetic research is reported and used.

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Molecule of DNA forming inside the test tube equipment.3d rendering,conceptual image.

(China) In wake of gene-edited baby scandal, China sets new ethics rules for human studies – Science (Dennis Normile | March 2023)

The genetic work conducted by He was truly shocking and stunned the world. The long-term effects on the girls may not be known for decades. Presumably, the girls will be the subject of multiple investigations throughout their whole lives.  Superficially, this move by China with tighten up their health research guidelines so nothing like this can happen again.  However, some have observed that the new guidance does not go far enough. 

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Conceptual caption Research Ethics. Business approach interested in the analysis ofethicalissues that raised Abstract Gathering Investigation Clues Online, Presenting Internet Ideas

Respecting relational agency in the context of vulnerability: What can research ethics learn from the social sciences? (Papers: Jennifer Roest et. al. | January 2023)

Abstract Despite advances in theory, often driven by feminist ethicists, research ethics struggles in practice to adequately account for and

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Potential vaccination for COVID-19 concept. Beautiful banner - hands of Researcher holding Coronavirus 2019-nCoV Vaccine vials on blue hygienic tone background. Hope, Success, COVAX, Collaboration.

The Pandemic Uncovered Ways to Speed Up Science – WIRED (Saloni Dattani | October 2022)

The accepted wisdom is that careful research to develop new treatments take many years, if not decades.  It is the reason why there has been such a delay between the commencement of clinical trials and the availability of the treatment.  That is why some worried that the availability of Covid treatments was an indication the research been rushed and so the vaccines where are unsafe. The reasoning being, fast research couldn’t be quality research.  However, the response to the pandemic has shown it’s possible to do quality research research quickly.

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A hand writing the words, "CLINICAL TRIALS" on the inside of a pane of glass.

(EU) New EU Protocol Aims to Improve Clinical Trial Transparency – TheScientist (Sophie Fessl | February 2022)

The results of clinical trials that aren’t published are a problem. It’s wasteful and inefficient because down the track researchers/clinicians might feel the need to replicate the work to determine if the intervention is safe and efficacious.  It is dangerous because subsequently, patients and clinicians might try using the intervention not knowing what the side-effects might be, the risks and whether it will help.  It is disrespectful to the people who participated in the research because they will not get to see how their participation ended in results.  For these reasons, the EU should be congratulated for introducing this protocol.  It is worth noting however, that the US has had law in this regard, which highlights that merely having a regulatory provision means little, unless you enforce it. We are hopeful the EU will enforce this new positive protocol.  We have included links to six related items.

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Digital artwork of a baby overlaid genetic represenations.

Returning individual research results in international direct-to-participant genomic research: results from a 31-country study (Papers: Michael Lang & Ma’n H. Zawati | April 2022)

Abstract This paper summarizes the results of a 31-country qualitative study of expert perspectives on the regulation of international “direct-to-participant”

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Work with transgenic mouse in modern laboratory

(UK) NC3Rs – National Centre for the Replacement Refinement and Reduction of Animals in Research (Website)

Replacement, Reduction and Refinement A UK-based scientific organisation dedicated to helping the research community worldwide to identify, develop and use

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A Wordcloud around the concept of governance.

(Australia) Factsheet: Research Governance (Resource: The Institute of Internal Auditors Australia | October 2020)

Why this fact sheet? This fact sheet is designed to show in a straightforward way why research activities need specific

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