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Biobank

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Reconsidering Dynamic Consent in Biobanking: Ethical and Political Consequences of Transforming Research Participants Into ICT Users (Papers: Alexandra Soulier | June 2019)

Abstract: Biobanks are not new. However, the scope of their application is growing, especially in genomics. Biobanks are also currently

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Figure looking at a poster

Reconsidering Dynamic Consent in Biobanking: Ethical and Political Consequences of Transforming Research Participants Into ICT Users (Papers: Alexandra Soulier | June 2019)

Abstract: Biobanks are not new. However, the scope of their application is growing, especially in genomics. Biobanks are also currently

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Confident doctor looking at his senior patient while speaking to her

Informed consent in international normative texts and biobanking policies: Seeking the boundaries of broad consent (Papers: Palmira Granados Moreno and Yann Joly | 2016)

Abstract With the progress in bioinformatics, genomics, and epidemiology, biobanks, as repositories of populations’ biological samples as well as of

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Sample and data sharing barriers in biobanking: consent, committees, and compromises (Paper: Flora Colledge MA, et al | December 2013)

Abstract The ability to exchange samples and data is crucial for the rapidly growth of biobanking. However, sharing is based

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Stethoscope and gavel resting on a book with "PRIVACY LAW"

Open consent, biobanking and data protection law: can open consent be ‘informed’ under the forthcoming data protection regulation? (Papers: Dara Hallinan & Michael Friedewald | 2015)

Abstract This article focuses on whether a certain form of consent used by biobanks – open consent – is compatible

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Participants’ Understanding of Informed Consent for Biobanking: A Systematic Review (Papers: Elizabeth R. Eisenhauer, et al | 2017)

Abstract Nurses are increasingly asked to obtain consent from participants for biobanking studies. Biobanking has added unique complexities to informed

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Incorporating Exclusion Clauses into Informed Consent for Biobanking (Papers: Zubin Master and David B. Resnik)

Determining how best to obtain valid consent for the use of human biological samples collected for research is a challenging

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Journal Publishes Concern About Study Using Forced Organ Donation – Medscape (Diana Swift | June 2019)

The Clinical Journal of the American Society of Nephrology (CJASN) recently issued an “Expression of Concern” regarding a 2008 article

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