ACN - 101321555 Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Friday afternoon’s funny – Faster recruitment0

Posted by Admin in on May 10, 2019
 

 

Cartoon by Don Mayne www.researchcartoons.com

A recruitment method might be faster and more effective (e.g. If 6 colleagues work together).  But is it superior and ethically superior?  If that depends on who you ask, then you probably should conclude it isn’t.

Australian Mental Health Consumer and Carer Perspectives on Ethics in Adult Mental Health Research (Papers: Alyssa R. Morse, et al | April 2019)0

Posted by Admin in on May 5, 2019
 

Abstract
Barriers to research arise when national ethical guidelines governing the inclusion of consumers in mental health research are implemented at the local level. Equivalent guidelines for research involving carers are not available. A social science investigation of Australian mental health consumer and carer perspectives on research ethics procedures was conducted in two interlinked stages: (a) a discussion forum with consumers, carers, and lived-experience researchers and (b) in-depth interviews with consumers and carers. Data collection and analysis drew strongly on methodological features of grounded theory. Privacy, confidentiality, and stigmatizing ethics procedures were key issues for consumer and carer participants. Recommendations for research practice include the following: considering the impact of information sharing on participants’ relationships and adopting individual-focused approaches to managing research risks.

Keywords:
caregiver; carer involvement; consumer involvement; mental health; research ethics; service user

Morse, A. R., Forbes, O., Jones, B. A., Gulliver, A., & Banfield, M. (2019). Australian Mental Health Consumer and Carer Perspectives on Ethics in Adult Mental Health Research. Journal of Empirical Research on Human Research Ethics. https://doi.org/10.1177/1556264619844396
Publisher: https://journals.sagepub.com/doi/abs/10.1177/1556264619844396

U.S. Public Health Service STD Experiments in Guatemala (1946–1948) and Their Aftermath – Ethics and Human Research (Kayte Spector‐Bagdady Paul A. Lombardo | March 2019)0

Posted by Admin in on April 22, 2019
 

ABSTRACT
The U.S. Public Health Service’s sexually transmitted disease (STD) experiments in Guatemala are an important case study not only in human subjects research transgressions but also in the response to serious lapses in research ethics. This case study describes how individuals in the STD experiments were tested, exposed to STDs, and exploited as the source of biological specimens—all without informed consent and often with active deceit. It also explores and evaluates governmental and professional responses that followed the public revelation of these experiments, including by academic institutions, professional organizations, and the U.S. federal government, pushing us to reconsider both how we prevent such lapses in the future and how we respond when they are first revealed.

Read the rest of this discussion piece

Hopefully most people with an interest in the history of human research ethics will be well aware of the egregious ethical breaches and misdeeds in Guatemala. (If not we’ve included links about the case).  This item appears to raise nothing new. However,  it questions whether merely reporting a breach is sufficient.  Mark Israel considers that question further in his commentary piece in the subscribers’ area.

The Ethics of Learning Analytics in Australian Higher Education. A Discussion Paper (The University of Melbourne | March 2019)0

Posted by Admin in on April 11, 2019
 

Overview

This project brought together learning analytics experts from across Australia to explore key ethical issues relating to the development and use of learning analytics in higher education. The result of these discussions was a discussion paper that provides an outline of seven ethical principles as well as practical considerations associated with the use of learning analytics.

Objective

The ever-increasing availability of data about student activities in educational environments presents many opportunities for the improvement of learning and teaching through the use of learning analytics. In applying analytics, there is an obligation that educators and institutions ensure that data and analysis techniques are used appropriately. The range of ethical considerations that educational institutions must face is complex, and many institutions are still formulating their approach to ensuring ethical practice in this field.

The objective of this project was to draw together contemporary research and current practice in the area of ethics and learning analytics, and use this to produce a discussion paper that provides guidance to a range of higher education stakeholders including students, educators, researchers, and senior leaders.

Corrin, L., Kennedy, G., French, S., Buckingham Shum S., Kitto, K., Pardo, A., West, D., Mirriahi, N., & Colvin, C. (2019). The Ethics of Learning Analytics in Australian Higher Education. A Discussion Paper. https://melbourne-cshe.unimelb.edu.au/research/research-projects/edutech/the-ethical-use-of-learning-analytics

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