Beneficence Archives

(US) Suicide Hotline Left Ethics Board Out Of The Loop About Data-Sharing With For-Profit Spinoff – Forbes (Alexandra S. Levine | February 2022)

Crisis Text Line was an important service with an admirable mission. It was worthy of the support it received from the tech sector. But it is no surprise that ethical questions have been raised about the personal data shared with the commercial spin-off, Loris. The arguments are: 1. The data does not contain personal identifiers. 2. They shared their plans in 2018. 3. Their privacy statement disclosed that there would be sharing. But the matters raise the questions: (i) Does consent have a spirit that extends beyond a legal contract? (ii) Can an activity be ethical (as defined in ethics standards) and legal (as defined in privacy legislation) but still be in bad faith with participants?

The words "CRISPR Babies" with a modified helix in the background.

(China) How to protect the first ‘CRISPR babies’ prompts ethical debate – Nature (Smriti Mallapaty | February 2022)

It would seem likely that the Centre would result in heightened State monitoring and intervention in the lives of these three children. This portends a life very different from other Chinese citizens. Some would argue that oversight is an inevitable consequence of He’s modification of their embryonic genomes. It may be decades before we know if there will be any health consequences and whether they could be passed on to future offspring. We have included links to 18 related items.

(US) Confronting human rights abuses in the scientific literature – C&EN (David W. Christianson | April 2022)

To preserve the integrity of science and human research ethics arrangements it is important that journal editorial processes and human research ethics processes are mindful of potential human rights abuses. Such can come up anywhere but in the last few years, we have seen a run of them from China.

A funny cartoon of organised crime thugs forcing partipant to sign a consent form.

Friday afternoon’s funny – How not to ethically conduct a consent strategy

There is a good reason why research ethics reviewers ask about where a consent strategy will be conducted, who will be administering the consent process and whether any implicate coercion will be used. Hopefully, no one would ever use organised crime thugs to administer their consent strategy, in an isolated room and at least the impression that violence would follow if potential participants don’t ‘sign’. That notwithstanding, part of you has to chuckle at Don Mayne’s conceit here.

Human brain injury and neurological memory loss due to physical concussion trauma and head injury or alzheimer disease caused by aging with red gears and cogs in the shape of a thinking mind.

(Australia) Concussion researcher claims AFL hindered two-year research project into players’ health – The Guardian (Melissa Davey, et al | April 2022)

Another AFL concussion story, but not about the controversy swirling around Dr Paul McCrory. This one is about Associate Prof Alan Pearce, who claims the league is frustrating research on the horrors of CTE. Such work is vital so the lifelong consequences of these terrible sporting injuries can be better understood and mitigated. So if this report is true, it is mystifying.

Professional Development Concept. Professional Development Drawn on Dark Wall. Professional Development in Multicolor. Professional Development Concept in Modern Doodle Style.

Turnitin Integrity Matters Video: Exploring the pandemic’s impact on research integrity practices and commercialisation (Dr Esther Gan | February 2022)

In this video, we chat with Dr Esther Gan, a Scientist at Nuevocor in Singapore, who shares her insights and

A close-up of a shelf packed with medical records.

(US) Harvard eye researchers have eight papers retracted for lack of ethical approval – Retraction Watch (Adam Marcus | March 2022)

Prior to the nineties (and we’re being generous here), health researchers might be forgiven for forgetting research ethics review. Saying nothing about research ethics being an integral part of their research design. But those days are long past. Without ethics approval, we can only speculate about matters such as consent for the research (discrete from consent for the clinical procedure) and beneficence considerations.

Speech bubble on yellow background, with the word Ethics inside the bubble.

Ensuring quality and ethics of research on FGM: new WHO guidance out now – WHO (January 2022)

WHO joins other UN agencies and partners in new research agenda for FGM Research on female genital mutilation (FGM) over

ACN - 101321555 | ABN - 39101321555

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

(US) Suicide Hotline Left Ethics Board Out Of The Loop About Data-Sharing With For-Profit Spinoff – Forbes (Alexandra S. Levine | February 2022)

(US) Confronting human rights abuses in the scientific literature – C&EN (David W. Christianson | April 2022)

(Australia) Concussion researcher claims AFL hindered two-year research project into players’ health – The Guardian (Melissa Davey, et al | April 2022)

Turnitin Integrity Matters Video: Exploring the pandemic’s impact on research integrity practices and commercialisation (Dr Esther Gan | February 2022)

Ensuring quality and ethics of research on FGM: new WHO guidance out now – WHO (January 2022)

Compiled here are links, downloads and other resources relating to research integrity and human research ethics. more…

Research Integrity

Human Research Ethics

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Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

ACN - 101321555 | ABN - 39101321555

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

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Compiled here are links, downloads and other resources relating to research integrity and human research ethics. more…

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Research Integrity

Human Research Ethics

Research Ethics Monthly Receive copies of the Research Ethics Monthly directly by email. We will never spam you.

Australasian Human Research Ethics Consultancy Services Pty Ltd (AHRECS)

Research Ethics Monthly Receive copies of the Research Ethics Monthly directly
by email. We will never spam you.