National Human Research Ethics Conference – an administrator’s perspective
In this terrific post, Sara Gottliebsen reflects on the last few years’ experiences in organising the incredibly popular annual human research ethics webinar.
This free event was first conceived of by Gorden McGurk, who has organised the webinars over the last few years.
The Human Research Ethics conferences have established a very high standard for the design, execution, speakers and contents for such an event.
The event received very high praise and deserved to get it.
The itinerary of speakers, events and activities for a free event is simply remarkable and deserving of the highest praise.
Well done Gordon, Sara and the team.
AHRECS is proud to be one of the inaugural sponsors of this event and will be continuing our sponsorship in 2022.
The challenge of being ‘fit for purpose’
In this incredibly interesting post, Racheal Laugery reflects on an incredibly uncomfortable but very timely question.
Is the current approach to research ethics review fit for purpose?
In the context of the COVID-19 pandemic, border closes and reduced international student income, insufficient government funding and a drive towards commercial research/commercialisation is our current approach to research ethics review Imbil and responsive enough?
What needs to be challenged and
changed? How can we get there? Who will need professional development and capacity building?
This requires an approach to reform that is focused on research ethics reviewers, researchers and research office staff.
Change won’t be quick and easy, but is absolutely necessary to ensure an institution’s arrangements are fit for the time.
Our approach will need to be interactive and responsive to problems that we can’t foresee yet.
You must be this ethical…
In this controversial post, AHRECS Senior Consultant Dr Gary Allen poses the challenging question: Should institutions with lean and fast proportional review arrangements leverage them as incentives for ethical behaviour.
AHRECS recommends institutions resourcing reflective practice, rather than police compliance (https://www.ahrecs.com/resources/resourcing-reflective-practice-whiteboard-video-7-5-min) but could such a systemic reward be helpful?
He discusses the behaviour that could be rewarded and how the reward might function.
The post suggests the arrangements, processes and data collection institutions will need to have in place to make such a reward system work.
While we are generally not fans of introducing any punitive element to human research ethics, preferring collegiate approaches that are focussed constructively on an institution’s research culture, this is an interesting idea. It is worth further serious consideration.
Adele’s Adventures in Wonderland*: Reflections on a 12-year journey in ethics, research integrity and so much more
In this post, inspired by Lewis Carol’s book, ‘Alice in Wonderland’ Adele Kay reflects on the wild and wacky (and sometimes surreal) experiences she had in a great career in the human research ethics, research integrity, animal, etc spaces.
She generously shares observations, tips and suggestions how to navigate this space with good humour.
Part of this is reading, interpreting and explaining national frameworks to executive and other senior staff.
She reflects upon useful skills, experience, training and education.
Working for constructive change on these matters from within an institution can sometimes be frustrating and feel a little wacky. Often AHRECS has been brought in to provide an independent and expert opinion on what internal staff have been saying for some time.
We suspect her commentary and experiences will both ring true for experienced practitioners and offer helpful tips.
We greatly enjoyed this post and we hope you will too.
Samaritans UK: Developing ‘fit for purpose’ research ethics processes within a large third sector organisation
In this post, Simon Anderson (AHRECS Associate) and Liz Scowcroft (Head of Research & Evaluation, Samaritans UK) discuss the history of research ethics policy and research ethics review at Samaritans (UK).
Part of this discussion reflected on moving beyond arrangements that are very similar to those used by higher education institutions toward something better suited to the needs of the 3rd Sector.
This requires a clear understanding that the designs, outputs, objectives and needs of a significant portion of research that is conducted internally to the 3rd sector is different and needs different Solutions.
A proportional approach to research ethics review and related processes have been adopted by Samaritans, as well as widening of the definition of research and a whole of institution commitment to research ethics.
Simon and AHRECS were delighted to work with Samaritans to produce a blueprint for constructive change.
Send an email to enquiry@ahrecs.com if you would like to discuss how we could assist your institution.
Investigating an ethical barrier – should HRECs require gatekeeper approval from universities before external research?
Investigating an ethical barrier – should HRECs require gatekeeper approval from universities before external research? | In this traffic post, Kate Christian questions the elephant in the room when it comes to research about universities.
Why do ethics committees require the approval of the institution?
Especially when participants aren’t vulnerable.
Whose interests are they protecting and why?
For national research, the results can be time-consuming, frustrating and add a little to the research.
Early career researchers might meekly accept this but it sucks time, energy and resources. But research Ethics committees should ask themselves the questions: Is this efficient and is it fair? Insisting upon institutional approval may well be skewing the data and distorting the results?
What do HREC members think and do when deciding about children’s participation in social research? Results from the MESSI survey
In this guest post, Associate Professor Stephanie Taplin (UTS) reflects upon the reflections and attitudes of members of a research ethics committee when reviewing a project involving sensitive issues, where the participants are young people.
She reflects upon the degree that this consideration is based upon standards and expectations that are often not transparent to researchers and can be an impediment to useful/important research.
This post is based upon a longer research output that was about research exploring those attitudes.
This included whether there were topics that a research ethics committee member would never approve for a research project to explore with young people.
This work points to the need for specialist professional development for committee members relating to research on sensitive issues with young people.
This also raises the question of what guidance material institutions publish for researchers and for reference by research ethics reviewers.
Think of, and treat, consent as a powerful and complex verb, not a strictly defined and constrained noun
The notion of consent and the expectation researchers will seek the prior consent of participants has a long history in human research ethics.
It has been a feature of many of the most infamous ethical Breakers commerce stamps and scandals.
Consequently, it has become a baked in feature of most of the guidelines on human research ethics.
But is that a good thing?
The typical approach to consent in human research doesn’t really work for a number of circumstances, research designs or potential how to participant pools.
Long strict guidelines can compound the error and can risk alienating researchers.
A more nuanced approach that provides guidance on necessary features of consent material can be more helpful than template consent materials.
This is exactly the kind of approach that this called for by the National Statement in Australia
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Featured posts
Ethics, Security and Privacy – the Bermuda Triangle of data management?
Malcolm Wolski and Andrew Bowness Griffith University To manage sensitive research data appropriately,
Ethical Self-Assessment: Excellence in Reflexivity or Corporatisation Gone Mad?
Research ethics and integrity have always been at the forefront of my work, not
Nobody expects…
In this post, Dr Gary Allen reflects on the establishment and conduct of constructive audits.
Dr Gary Allen
When research with current ethics approval is periodically monitored,[1] it is typically a passive process. Institutions, often via their research ethics administration, will ask researchers to self-report on the continued ethical acceptability of a project (and compliance with any conditions of approval). It would not be unreasonable to conclude that self-reporting is not the most effective way to identify if there have been problems with approved projects. Indeed, if things have gone wrong, it is at least possible that the most troublesome researchers might not be entirely honest about what has happened or why.
So, what is the alternative?
Conducting random audits of a small number of active projects…
HREC and AEC Workshops in Perth
AHRECS is conducting Human Research Ethics and Animal Ethics workshops in Perth in November.
Wed 3 November 2021 – Animal Ethics workshop
The theme this year focuses on managing large groups of animals such as in laboratories, farms and in the wild. Researchers are adept at managing animals, but when the numbers become very large things can become ethically complex. For instance, how are the 3R principles being met?[iv] Further, when there is overlap between research and the management of a farm or when research is focused on the needs of wildlife the ethical complexities of managing animals as part of research can increase. What are the key issues an AEC needs to focus on and how is this best approached? Expert speakers will address these issues covering the ethical considerations of integrating research into large farm operations, the ethical issues of undertaking environmental research involving large numbers of animals, and a panel of experts will discuss the ethical issues encountered when managing large laboratory projects involving animals.
Wed 17 November – Human Ethics workshop
The theme this year focuses on “what I wish I knew before I started”. It is not uncommon for research to raise ethical questions that were not…