We respect you… we just don’t need to hear from you anymore: Should the consumer and their community participate in research as partners instead of just being subjects?
By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador Council the Hopkins Centre| Ambassador MS
Update on the new subscribers’ area
We are currently expecting the new service to go live prior to us sending the July 2019 edition of the Research Ethics
“Reminder about service options and an easy way to pay AHRECS,” we say… aware of how corporate sleazy that sounds
Dr Gary Allen, Senior Consultants AHRECS Prof. Mark Israel Prof. Colin Thomson AM . Just in time for the end of the
Is it something I said (or the way I said it)?
Dr Gary Allen, Senior Consultants AHRECS Prof. Mark Israel Prof. Colin Thomson AM . Reflecting on review feedback Feedback from the research
Research Ethics and the New Gene-editing Technology
Nik Zeps, Consultant, AHRECS Keywords: Ethical Review, International Guidelines, Gene editing technologies, It has now been over six months since
Complainant anonymity in misconduct proceedings depends on the forum
Prof. Colin Thomson AM, Senior Consultant, AHRECS This news item, while identifying the fact that the decision relates to court proceedings
A call for a national inquiry into the burden of research ethics and governance
Adrian Barnett, Queensland University of Technology . Do we need a national inquiry into the burden of research ethics and
Monitoring research is too important to be optional and too resource intensive to be manual
Dr Gary Allen, Senior consultant AHRECS | Profile | gary.allen@ahrecs.com The National Statement specifies researchers submitting self-completed ethical conduct reports as
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We respect you… we just don’t need to hear from you anymore: Should the consumer and their community participate in research as partners instead of just being subjects?
By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador
Unnatural justice: Public allegations could cause significant harm to vital clinical trial activity
In this thought-provoking post, Nik Zeps (a consultant with AHRECS and a partner at Chrysalis) discusses the serious harm (in terms of reputation and career, as well as lost useful lines of inquiry) when there are complaints that allege ethical problems with clinical research.
These relate to situations where the clinical research is evaluating different kinds of intervention, where the evidence for the ‘accepted’ treatment might not be clear.
A misunderstanding of such research designs and a visceral reaction to apparent breaches aren’t helpful.
When such allegations are made, the researchers are rarely afforded an opportunity to respond and explain. If they were, one assumes that the manner could be easily cleared up.
We are embarrassed to admit in our own reporting of the cited case we really didn’t grasp the realities of what occurred or called out the very emotive reaction.
You must be this ethical…
In this controversial post, AHRECS Senior Consultant Dr Gary Allen poses the challenging question: Should institutions with lean and fast proportional review arrangements leverage them as incentives for ethical behaviour.
AHRECS recommends institutions resourcing reflective practice, rather than police compliance (https://www.ahrecs.com/resources/resourcing-reflective-practice-whiteboard-video-7-5-min) but could such a systemic reward be helpful?
He discusses the behaviour that could be rewarded and how the reward might function.
The post suggests the arrangements, processes and data collection institutions will need to have in place to make such a reward system work.
While we are generally not fans of introducing any punitive element to human research ethics, preferring collegiate approaches that are focussed constructively on an institution’s research culture, this is an interesting idea. It is worth further serious consideration.
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