We respect you… we just don’t need to hear from you anymore: Should the consumer and their community participate in research as partners instead of just being subjects?
By Dr Gary Allen| Senior Policy Officer, Office for Research Griffith University | Ambassador Council the Hopkins Centre| Ambassador MS
Update on the new subscribers’ area
We are currently expecting the new service to go live prior to us sending the July 2019 edition of the Research Ethics
“Reminder about service options and an easy way to pay AHRECS,” we say… aware of how corporate sleazy that sounds
Dr Gary Allen, Senior Consultants AHRECS Prof. Mark Israel Prof. Colin Thomson AM . Just in time for the end of the
Is it something I said (or the way I said it)?
Dr Gary Allen, Senior Consultants AHRECS Prof. Mark Israel Prof. Colin Thomson AM . Reflecting on review feedback Feedback from the research
Research Ethics and the New Gene-editing Technology
Nik Zeps, Consultant, AHRECS Keywords: Ethical Review, International Guidelines, Gene editing technologies, It has now been over six months since
Complainant anonymity in misconduct proceedings depends on the forum
Prof. Colin Thomson AM, Senior Consultant, AHRECS This news item, while identifying the fact that the decision relates to court proceedings
A call for a national inquiry into the burden of research ethics and governance
Adrian Barnett, Queensland University of Technology . Do we need a national inquiry into the burden of research ethics and
Monitoring research is too important to be optional and too resource intensive to be manual
Dr Gary Allen, Senior consultant AHRECS | Profile | gary.allen@ahrecs.com The National Statement specifies researchers submitting self-completed ethical conduct reports as
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An ethics argument for data sharing
In this post, Gary Allen and Nik Zeps explore the human research ethics arguments and imperatives that only allow for the sharing of data, but establish a public good that can make sharing expected and essential.
This expectation should shape the approach to consent, the framing of assurances given to potential participants about confidentiality and e reflected in the application for research ethics review.
Research ethics committees and review bodies should be cognisant of these ethical arguments during the research ethics review of projects
Institutions must have clear policies and guidance material on data sharing.
Is human research ethics review a form of out of date, inefficient and ineffective regulation?
As I reached page 35 of the latest NEAF application for the next HREC
What are questionable research practices as reported by ECRs in STEMM in Australia?
Katherine Christian, Carolyn Johnstone, Jo-ann Larkins, Wendy Wright and Michael Doran Katherine Christian, Federation
Heeding our stories: Getting the most from a reference group in disability research
Gary Allen, Carolyn Ehrlich, Michael Norwood, Delena Amsters and Maddy Slattery’s post reflecting on great engagements with disability reference groups.
Here, we aim to share insights from a group of Griffith University researchers and a consumer reference group, who worked together on a research project during the development of materials and methods, as well as in the dissemination of research outcomes. The research project we conducted aimed to explore the research experience of people with acquired disability. We wanted to understand what researchers could do better to be more inclusive of people who are often described as vulnerable or marginalised by the National Statement and subsequently Human Research Ethics Committees. We wanted to know how to best include them as participants in, rather than subjects of, research.
This is not a post advocating for the use of reference groups for research involving those with disability and chronic health conditions. Calls for respectful inclusion have already been eloquently made…
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