Why resourcing practice is a better option for institutions than policing compliance
Dr Gary Allen
July 25, 2021
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Research Ethics Monthly
ISSN 2206-2483
Internal Human Research Ethics annual reporting
June 28, 2021
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In this post Gary discusses the components of a good internal report from a research ethics committee to the governing body of the host institution.
Such reports should be produced annually.
A constructive report should provide a snapshot of the committee during the reported period.
The report should cover specific matters that are optional and strategic in nature.
An ethics argument for data sharing
June 28, 2021
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In this post, Gary Allen and Nik Zeps explore the human research ethics arguments and imperatives that only allow for the sharing of data, but establish a public good that can make sharing expected and essential.
This expectation should shape the approach to consent, the framing of assurances given to potential participants about confidentiality and e reflected in the application for research ethics review.
Research ethics committees and review bodies should be cognisant of these ethical arguments during the research ethics review of projects
Institutions must have clear policies and guidance material on data sharing.
Research ethics reviews: responding to the challenges faced by international postgraduate students
June 21, 2021
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In this great post, Mark Israel, Julia Miller, Liwen Tan and Kristy Davis discuss the extra challenges that confront international students when it comes to human research ethics and navigating research ethics review and the daunting challenge of satisfying an unsympathetic research ethics committee.
This scary rite of passage is made even harder if your native language doesn’t have direct translations for ethics terminology or if there are cultural concepts without direct correlation.
This is a matter that should be carefully considered by research ethics committees, research offices, international offices and graduate schools.
Confidence versus mandatory reporting
June 18, 2021
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In this post find out why Gary is cranky about the proposed good practice guide for Australian Research Integrity Advisers.
#SPOILERALERT It is because he believes institutions need a network of collegiate Research Integrity Advisers to nurture and support a community of practice within their institution.
He also thinks mandatory reporting and telling people to speak in hypotheticals are STUPID.
While Gary describes this as a personal opinion, we agree. We don’t see how mandatory reporting will make serving as an RIA would be appealing or encourage anyone to consult them about whether an individual’s practice is appropriate.
AHRECS provides desktop audit and blueprint on Research Integrity within an institution and conducts professional development for RIAs.
Contact enquiry@ahrecs.com to discuss.
Areas of activity
April 30, 2021
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We are delighted with how busy AHRECS is at the moment in the human research ethics and research integrity spheres in Australia, Aotearoa New Zealand and the United Kingdom. Our current work can be broken down into four categories:
1. Informing the practice of a research institution
2. Fostering and supporting a community of practice
3. Helping with tricky questions
4. Formulating an approach
To discuss any of the above, contact one of our senior consultants, or send an email to Enquiry AHRECS enquiry@ahrecs.com.
While our activities are focussed on Australia, Aotearoa New Zealand and…
Element Zero: What’s missing from the National Statement to support Consumer and Community Involvement in health research?
April 28, 2021
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In this great post, Mark, Deborah and Ciara discuss a useful new element for the National Statement that relates to genuine involvement, input and participation for consumers/community members.
Mark Israel, Deborah Hersh and Ciara Shiggins
Advocates in health research of Consumer and Community Involvement – a concept better known in the United Kingdom as Patient and Public Involvement (PPI) – argue that it offers a way of building knowledge that incorporates the experiences and perspectives of a range of stakeholders, including patients and members of the public. Such involvement can improve the experience for research participants, enhance the process of informed consent, aid research impact and dissemination. It might also avoid the waste of resources on findings that have little relevance to end users or that cannot be implemented…
Nobody expects…
April 26, 2021
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In this post, Dr Gary Allen reflects on the establishment and conduct of constructive audits.
Dr Gary Allen
When research with current ethics approval is periodically monitored,[1] it is typically a passive process. Institutions, often via their research ethics administration, will ask researchers to self-report on the continued ethical acceptability of a project (and compliance with any conditions of approval). It would not be unreasonable to conclude that self-reporting is not the most effective way to identify if there have been problems with approved projects. Indeed, if things have gone wrong, it is at least possible that the most troublesome researchers might not be entirely honest about what has happened or why.
So, what is the alternative?
Conducting random audits of a small number of active projects…
Tongue in Cheek
March 22, 2021
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Farida Fozdar responds and reflects upon the February 2021 post by Gary Allen and Mark Israel.
Farida Fozdar
The Tower of Babel (Allen and Israel, 2021) is a compelling image when considering issues to do with translation and interpreting and the ethics of social research. Even when we speak the same language, we may not be ‘speaking the same language’, so to speak (excuse the triple metaphor). Talking past each other occurs in many ways but, in communicating the clear purpose and potential risks of one’s research, clarity is vital. Here, I outline a few issues from personal research experience, arguing that the communities themselves may be best placed to identify ethics issues and solutions to translation and interpreting dilemmas.
When working with those from a language different from that of the researchers, it may be the case that the idea of research is not well understood in the culture of origin…
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Dr Gary Allen AHRECS Senior Consultant Many national frameworks for human research ethics, such
Get access to some great resources (two examples included in this post) and support events like the Constructive Voices panels
November 21, 2018
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Every month we add at least two items to the subscribers’ area. These include
Australia Day honours recognise contributions to human research ethics
February 25, 2019
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We wish to add our congratulations to two recipients of honours on Australia Day